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  1. #1
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    Default Off & On Fatigue (Anemia) Question:

    When I have it my biggest problem is sleepiness. Comatos-like after waking. I don't want to get up, even after a full night's sleep. But it comes and goes. Have had it for the last couple of weeks - but this morning I wake without it.

    Wondering what makes it come, what makes it go - or is it just how things are.

    David

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    Same thing here and I'm supposed to be 'medically in remission'. I, and the rheumy, simply write it off to WG as everything else is normal numbers wise, and other than the recurring lethargy, I have no other symptoms. Could be the mtx, but she says it isn't likely...I'm starting to think it's the 'way we ARE'...I know, too early for Streisand references! LOL! Yes Light, I do need another cup of coffee...sighs...some nites I can sleep 10-12 hours...others it's like pulling teeth to drift off. And waking is a real 'stumbler'...literally...takes me about 15 minutes to get things going...another reason for having solid and dependable routines...hate crashing into stuff in the dark of the morning! LOL!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


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    I can certainly empathize both with sleepiness and sleeplessness! Don't know why it happens, though!!

    KB
    KB -- "The good life is inspired by love and guided by knowledge". Bertrand Russell

    Dx in September, 2011. Major involvement: kidneys and lungs. Medical implications: fungal pneumonia, drug-induced hepatitis, allergy to fungal meds, ear infections, sinusitis, gall bladder removal, vitreal detachment, and eye cellulitis. Medial meniscus removal (unrelated to WG). Medications: Rtx, Pred 5.0, Lisinopril, Chlorthalidone, Levothyroxin, Omeprazole.

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    I've got the same basic issue. It's not as intense as the fatigue when flaring, but there is a noticeable amount of fatigue more regularly than I'd like.
    ~ Bob

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    Me, too, for all of the above. I find that a small amount of melatonin helps me drift off at night. I take 75mg, preferably half an hour before I want to sleep. Available OTC.

    As for the fatigue, my doc says I'm not anemic, so it's not that. I think it's a combo of the drugs, low adrenal function in AM before taking pred, and just the physical demands on the body of having WG.
    Anne, dx'ed April 2011

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    That's the way it has been for me the last 10 years.
    Phil Berggren, dx 2003

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