Is anyone else on Cellcept for their Wegs? I've been on it for 1.5 years, and while I tolerate it okay, we can't say I'm in remission (never have been). I have improvements in some areas, though.
However, the past few weeks, I've developed some neurological symptoms that are concerning. The manufacturer of Cellcept issued a warning to physicians this year about an increased incidence of people taking Cellcept acquiring a disease called PML. (Good thing for abbreviations--it's a mouthful) It can affect many organs, but if it affects the brain, well, it's not good. That's the area of concern for me.
We have to do a LOT of tests the next couple weeks to see what's going on. Sometimes it's a blessing to be a doctor going through all this, sometimes it's a curse. Before I even saw my rheumy's face as he assessed my symptoms, I already knew it was trouble.
If you're the praying type, would you mind saying one for me? Thanks-- I'll keep you posted as I learn more.
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