Hi Maggie, I take cellcept 2000mg and take it with food. I do take Nexium 40 mg every three days for the stomach. I am on other medicines also to keep wegs somewhat quiet. Are you only on cellcept for the wegeners?
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Hi Maggie, I take cellcept 2000mg and take it with food. I do take Nexium 40 mg every three days for the stomach. I am on other medicines also to keep wegs somewhat quiet. Are you only on cellcept for the wegeners?
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Yes, and we have seen Dr. Seo (at JH ) twice. Hubbie was doing so very well for several years after going into remission, his rheumatologist debated taking him off even that low dose. Then last May, It "all fell apart" and seems like the Cellcept no longer works. In spite of longer, slower prednisone tapers, he can't go lower than 12mg. without another joint flaring. Then he needs to go back to 30 mg. and start the taper all over again. We have been battling shingles for the past month (another story - glad to share if anyone needs/cares, quite a "journey" there too). Have an appointment with rheumatologist March 10 to see what options other than Cellcept and Immuran (which he can't tolerate) there are. We are both anxious for him to try something else. Recently our naturapath doctor (med school Harvard, first) showed us information about gluten free diets helping some other autoimmune patients. Feel like I am learning to cook all over again, as some of the gluten free processed foods just don't look healthy (little fiber, high sugar) but it is a fun challenge for me. Thankfully now retired toso I have time to work at it.
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Are you going back to Dr Seo? He can guide you on what other drugs are options.
I'm glad that you're trying gluten-free. It works for some people. I would suggest avoiding the processed foods, though. You're right that they're not healthy!
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We live about 5 hours North of JH so see a rheumatologist in our area who has been in touch Dr. Seo. Hoping they consult again as th eJH appointment isn't until June.
Hubbie has noticed his hands are shaky lately. One of hobbies is electrical wiring and is having trouble doing that. Maybe I should look into those Cellcept side effects.
Just brought him home from the ER with a sprained ankle (slight bone chip). Is that likely to take longer to heal, also? We are still battling shingles.Poor guy!
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I have tried to take it as prescribed, which is two hours after eating. When I tried taking it an hour before eating which is also recommended I ran in to big problems so had to go back to taking it 2 hours after.
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Am on cellcept, prednisone but only 5mg a day, septra as a maintenance drug to hopefully ward off infections. The cardiologist says my heart is too efficient and drains out the arteries so they almost collapse so they have me on a beta blocker along with my blood pressure meds. Also extra iron because my red blood cell count is pretty low. When I saw the cardiologist last week he increased the beta blocker but after taking the increased dosage one time I had a terrible vertigo reaction that lasted several hours.
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Since he's been going up and down on pred, it might be good to travel to see Dr Seo sooner than June. It's hard to tell how often a local doc would call for help. Staying on high-dose pred like that is very dangerous--short-term and long-term. If he can't tolerate being at 12 mg then it sounds like something is wrong with the rest of his treatment.Originally Posted by NanTom
Shaky hands are usually from pred. What dose is he on now?
And yes, any injuries will take longer to heal with pred.
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Dr Seo was okay with me taking it with meals.
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