I’ve been using the saline gel to keep my nose moist, to see if that will help with the nose bleeds. No dice. I saw the ENT again today (ahead of schedule) at my Rheumy’s suggestion. Her thoughts were, we need to go ahead with a biopsy in the event it’s Weg’s. If it is, we know the treatment of Cytoxan over the last year is doing what it’s supposed to do. If it’s not, we know it’s working and we can think about tapering the Cytoxan. Hopefully, either way, my nose will stop bleeding.
Does this sound right? Is the surgery that bad? Remember, I don’t currently have any sinus issues aside from the recent start (Aug) of nose bleeds. Everything looks great on CT and with the nasal camera, aside from a few spots, that could be the cause of the nose bleeds.
They are calling me later to schedule the surgery. Wish me luck.
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