My husband (35 years old) has just been diagnosed with WG. He is being sent to a Lung specialist and has a CT scheduled for the 26th. The doctor (ENT) did not offer much information on this disease other then to say it is an immune disease and that he would have to be under a Lung Specialists care.
Since the doctor left the results via voicemail at 5:05pm we knew NOTHING about WG. Against my good judgement I decided to "google" it and made the mistake of reading numerous websites. I didn't have the heart to tell my husband most of what I read.
My husbands ONLY symptom is that he has a stuffed up nose. We moved to NC from KS last October was a year ago. As we approached the Spring (Last Spring) he though he had allergies. He didn't see a doctor due to the fact that Allergies run in his family. Since it doesn't get too cold where we live it is not abnormal for some people to have allergies all year round. Over the past month or so it has become worse. He use to run however due to the severness of the stuffiness he couldn't run due to not being able to breathe. He finally went to an ENT thinking he had pollups (sp?) and he put him on an antibiotic as well as a nose spray for 5 days. He had his follow-up this past Monday and it was discovered that nothing had changed. He then sent him for bloodwork and scheduled a CT. Yesterday he received the results that it was WG. I have read a lot on line since getting the results and realize that most patients find out only after they have kidney/renal failure.
Any and all advice would be great concerning this. Please Educate us, not on what you have read but what you have experienced. We have two kids (14 and 7) and the NOT knowing is terrifying.
Thanks!
Stephanie
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