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Thank you for this post. I am going to do Rtx infusions soon. (I had a second opinion at the Cleveland Clinic). You answered a lot of my questions! I know there are probably thousand ways to give it...

So you should be about half way...still doing good? I was diagnosed two months after my baby girl was born. Only problem I had during my pregnancy was something called choloeostasis of pregnancy....

Hi. I am from Houston too. I see Dr. Filemon Tan at the UT Physician Building. I am an Anca negative WG. My doc is good but I think they are just patching my symptoms. I don't feel that I am headed...

Debra, I am a radiation therapist. I treat cancer patients. No jobs available either in our system or outside. My game plan includes my severance package will give me enough money to finish CT (cat...

Thank y'all very much. Yes Phil, I already have an appt with my Rheumy. I am praying that this opens a new, beautiful door in my life.

So I found out last week that the hospital is shutting my department down where I work. So Sept 5th I will be out of a job! I am so scared about losing my insurance and being able to pay for my...

Hi Beverly! I am from south of Houston. I am new also. My WG is mainly in my throat, eyes, ears and sinuses. So grateful I found this forum. Everyone is very nice and helpful. Welcome.

How long were you on pred? I have been on 60 mg for almost a year finally tapering and as of today on 15 mg a day. Think I should ask MD about bone scan.

Interesting because my teeth have been very sensitive to cold this week. Very painful. I take 20mg of pred and 25mg of MTX a week. I have had sores in my mouth since the 3rd week of MTX. I get the...

When I was seeing my Rheumy for the first time I remember him asking this question about my ears being red hot. He said that was a symptom of another form of vasculitis. I can't remember the name...

Welcome! Marissa from Houston area! I hate pred with a passion! Worst side affects but yet it's my only means of living. I am new here too. Everyone has been extremely supportive. It's a wonderful...

Just signed up. Put you as a referral! Anyone hear from them yet?

I have the same issue. I am on MTX and pred. I still have nasal crusting and bleeding. I go to the ent often to get checked out (My initial problem was a granuloma in my larynx), she said no prolapse...

I have been on the pred 20mg for several months and just went to 15mg this past week. Does your body get used to the lower dose? Besides the extreme fatigue, I have also lost my appetite. Which is a...

I am on my 7th week of MTX and I am super exhausted. It is interfering with work and spending time with my kiddo. I am always napping or laying down. I take 6 pills a week with 2mg of folic acid. I...

Sorry for the long pause, time is flying by. Phil, the throat is very painful. I usually have no voice. When it comes back, I sound like I have smoked my whole life. I can't eat without choking and...

I have had a mass in my throat(it's in the arytenoid fold above my right vocal cord) for almost a year. I have had several rounds of steroids to shrink it so that I don't have to be trached. So I am...

Thank you Phil. I don't have hearing aids. Only one ear is that bad. My other i can still hear pretty well out of. My rheumatologist wants me to be off the pred before I have my hearing reevaluated....

I have had my hearing loss for a while. In fact I was diagnosed with Meniere's Disease do to the loss. Of course that has since been dismissed due to my other issues I started having. (Sinus and then...

I have the red eye vampire look too! The eye doctor stated my eyes were very dry and I had scleritis. I have a pain behind the right eye and also a shooting pain in the ear. I don't have a ulcer. I...

Thank you all for the wonderful welcome! Y'all have already given me great advice. I will try the inhaler trick. I am on a different right now. I need to see if my rheumatologist will get me that...

Thank you Pete. Yes my doctor specializes in vasculitis. He told me that so far my problems are only affecting my upper respiratory system, my lungs and kidneys are clear. He wanted to use the...

Hi, I am from Houston and have been recently diagnosed with limited wegs. It started last year about 2 months after the birth of my daughter. I started having difficulty swallowing and breathing. I...