View Full Version : General WG Chat
Pages :
1
2
3
4
5
6
7
8
9
[
10]
11
12
13
- Why was the MRSA- AAV thread shut down?
- Positive ANCA
- Eye issues
- ent visit
- Throat Issues
- Ohio Get Together! :)
- 2015 VF Vasculitis Patient and Caregiver Conference - Cleveland Clinic
- Wegener's involvemnet in the breast
- wegners & dialysis
- Got The OK To Stop Pred But...
- I have Bronchitis now
- Polycondritus anyone? ?
- Just curious if you were told this?
- "Stuff" getting stuck-coughing it out
- Oxogen therpy
- Feeling miserable
- Still Confused
- I don't know what to think now !
- Results back - c ANCA up again
- Nodules
- Trish
- Webinar about pred
- *it happens -- my routine crash
- wiki wegs
- Tocilizumab and IL-6
- flare ups
- Wegeners Granulomatosis / GPA specialists
- Rituxin questions?
- Had tracheal surgery
- Cindy Abbott - musher with WG
- progress report...
- Been a long time:
- Mastoid erosion anyone? ?
- We are RARE!
- Cleveland Clinic STILL causing trouble
- Rituxcin
- CT results
- Rituxin
- Tendon issues
- More Wegerner's people than thought?
- Stomach issues
- GPA and watery eye
- Shingles-please NO!!!
- Sleepless in Seattle....NOT
- Cleveland Clinic WG page
- New nebulizer mouthpiece set
- Should immunosuppressives be stopped in GPA with dialysis?
- ANCA positive now negative!
- Don't stop researching
- Thrush
- Post-op depression
- Question?
- Share your Extraordinary Vasculitis Story at the 2015 VF Symposium in Jacksonville
- Horrible taste
- A Year Ago Today
- I'm happy
- Vitiligo
- Bone loss
- Indiana weggies
- I Want A Massage!
- CC rant....AGAIN!
- Looking for other people who have WG and are from Mercer County, N.J..
- Each time, the frustration gets worse
- Spleen
- Occipital
- Empathy Cards
- I confess - I have been cheating on you guys.
- Overcoming Adversity - FEAT Canada Presentation
- Vasculitis Awareness Month 2015 May 1-31, 2015
- Going out in the Sun
- Bleh
- The Nose Holds Clues in Vasculitis
- Question about kidney symptoms
- Wegener's and Graves disease
- Are You A Former Immuran/Azathioprine User?
- Inflammation markers
- Good news
- Cataracts
- Remission
- Constipation ???????
- For those with Buttons in their nose...Advice please!
- What to expect?
- Feeling discouraged
- 2015 Vasculitis Conference in Jacksonville, FL
- Chestal and other cough syrups
- Calling those that have kids with the Wegs
- Finally...
- Foot Pain
- Nasty taste in mouth
- M t x
- Food For Thought
- Can't taste or smell!
- Checking in after Cleveland Clinic visit
- Need some advice
- New to site, but not wegs
- Yoga for respiratory and back problems
- Nose Geysers and other dumb issues
- Depression
- Iritated and unsure !!
- A little humor to brighten your day!
- Question on Fatigue
- Insomnia?
- 15 year old with wegeners
- VF Symposium 2015 Summary Notes
- hypoparathyroidism
- Acupuncture?
- Prednisone
- What to be worried about, what questions to ask?
- Dental work
- Has anyone dealt with weird neuropathy in the foot
- Urobilinogen
- Hearing & Eye Involvement?
- Lung operation
- Compressed Fractures??
- New potential drug for ANCA-Associated Vasculitis: Bortezomib
- Hydroxychloroquine
- It's just a little knee pain...
- Muscle pain and fatigue
- Things starting to improve
- Neutopathy Symptoms anyone? Confused?
- Leaving the Pred Zone
- knee replaced
- WG guide for the newly diagnosed
- Free book about GPA
- PROTEINASE-3 AB/C-ANCA Level when diagnosed and when in remission?
- 6 Week Check-up
- Intestinal Bleed
- Immune-suppressing Drugs and Working In A School?
- VPPRN enrolling patients outside the US now
- Happy Birthday Anne ♡
- Runner with Wegener's Runs Under 4 Minute Mile!
- Please help.. what do you think?
- Does anyone get...
- Please help strong pulsing sensation mid back and radiating
- How long before you stopped being worried all the time?
- The pain ... the pain ...
- Don't know what to make of this.... ?
- New Diet - Wish Me Luck!
- Can it be Wegeners if vascular blood tests are all normal?
- Anyone had a blue / black line around lips?
- Brain Involvement?
- My Come Back Story
- Ides on beating pred dependence?
- Wegeners and CLL - just scared today
- Home after Biopsy
- What causes Wegeners?
- For those with kidney involvement--question about fluctuation in eGFR
- Please help
- Who can recommend the best wegs doctor to see in australia.
- Weight loss
- Phoo - Chemo Now Affecting My Blood Tests
- Good News Bad News
- VA benifits for Wegeners or Camp LeJeune tainted water
- Been a long couple months
- Extra large plugs / slugs ???
- Concerned - Any Word on Aylasnan?
- ENT symptoms
- CellCept and Bronchitis?
- Please Help!!!!
- Balloon Sinuplasty -- any experiences?
- Well, the hair is going...
- Talked too soon.
- Hi Guys
- News of The Pierre(42)
- Contacting Dr David Jayne
- Pity, party of one?
- Here It Is!
- Pulmonary Rehabilitation
- When a flare is not a flare...
- Tooth Discomfort
- Donations for Heather's family
- Finally Going to CC! :)
- Questions About UTIs...
- My Video recorded at the Vasculitis Symposium
- Storing and Accessing Medical History
- Want my remission back!
- DNA studies for GPA
- I like parts of this link on problems with diagnosis and treatment of GPA.
- Omg pain!!!
- I'm so dumb
- First Flare
- Brent's Battle
- Probiotics actually helping us?
- Experiencing a Very Hard Time
- Bone Mineral Density Question
- Vaccinations: Live vs Dead Viruses (In Particular Shingles)
- Kidney stones
- What, me worry?
- Small fiber neuropathy
- Update on my new diet
- Out Of Lurkdom - Promised Pete
- Menstruation after stopping cyclophosphamide
- Parainfluenza virus 4
- Steroid Induced Hyperglycemia
- Sad Panda
- Having a tough time again
- Funding for Autoimmune Disease Research
- lung issues
- What does your doc do for rises in ANCA/PR3?
- Wanting to join military
- Cleveland Clinic Billing Rant Part 2
- Saddle nose reconstruction
- My Mother has WG, it's getting worse…and nobody cares!
- Info for a friend
- medicated remission fatigue
- Explaining to an 8 year old
- Jingle Bells
- WG Specialist South West Florida
- Hello from Hospital Bed, Day 11
- Interesting Article
- Sinus pain and headaches
- I'm HOME!
- Here we go again
- Very Sick
- Wegeners Granulomatosis and Dating.
- Contact Registry
- Mortality and Relapse Statistics
- Short fuse when not feeling good
- Facebook
- A True Story
- study regarding length of maintenance therapy
- ANCA - How to decipher (have reviewed multiple threads but still confused)
- Facebook Page Suggestions
- New found respect for Andrew
- Pneumococcus vaccin
- Might be getting somewhere.
- Cleveland Clinic ... the outrage continues
- Quick question on pain..
- Weggies Lounge
- Absolute Granulocyte Count
- Oh No - now what!
- Specialist in Sacramento
- Good News I Hope
- Rejoining the masses
- Help! Please help... desperate...
- Part 2 of my Video
- Can anyone relate?
- Blood Tests - what to check
- Small fiber neuropathy
- Nasal growths
- An update
- CRP and prednisone titration
- 'Remission' with rituxan for 8 years and now it's back...
- cAnca and MP3 question
- Scared of next month
- MTX question
- VF Webinar
- Maybe getting somewhere
- So you may have GPA.
- Foot Neuropathy, "Tingle" Relief - Can You Help?
Powered by vBulletin® Version 4.2.5 Copyright © 2024 vBulletin Solutions Inc. All rights reserved.