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Due to the large amount of spam signups from GMAIL, HOTMAIL and OUTLOOK addresses I have had to ban all these domains.
NEW MEMBERS:
If you are signing up with any of the above address then you will need to use a different email address that isn't one of these. Please
contact me
if you don't have another email address to use.
CURRENT MEMBERS:
Nothing changes. If you previously signed up with a GMAIL address then you're all good. This only relates to new signups.
Welcome to the Wegeners Granulomatosis/GPA Disease Support Forums. We hope you find lots of valuable information here. There is information, support and friendly chat here for sufferers, their family and friends. We hope you sign up and become part of this very supportive group of people.
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Today,
03:41 AM
Chadwyck
replied to a thread
Received my second dose of Rituximab (Ruxience)
in
Medication
Oh wow, I didn't even notice this until now... Thank you!
see more
4 replies | 2349 view(s)
Yesterday,
03:46 PM
Alysia
started a thread
Jasper
in
Random Off-Topic Discussion
Dear marta, I saw in the news that there are fires in Jasper. How are you and your family doing ? I remember your lovely city from the PJ day...
see more
0 replies | 33 view(s)
07-25-2024,
08:39 AM
Pete
replied to a thread
Question about Bactrimel
in
Medication
If you come to the US for treatment, it will cost. Having health insurance is the key to obtain treatment. You may want to check with the US Embassy...
see more
3 replies | 70 view(s)
07-25-2024,
01:55 AM
sissy_k
replied to a thread
Question about Bactrimel
in
Medication
Hello Pete! Thank you very much for replying. My rheumatologist also had told me that I would be on Bactrim for the rest of my life. Since the...
see more
3 replies | 70 view(s)
07-25-2024,
01:44 AM
Pete
replied to a thread
Question about Bactrimel
in
Medication
I have taken bactrim 3x weekly as prophylaxis against PCP pneumonia ever since I was diagnosed in 2011. I’ve never had any issues with it. My...
see more
3 replies | 70 view(s)
07-24-2024,
06:35 PM
sissy_k
started a thread
Question about Bactrimel
in
Medication
Dear friends, I'm a 31 year old female patient, diagnosed 10 months ago. When my kidneys got involved I was transferred to the nephrology...
see more
3 replies | 70 view(s)
07-16-2024,
10:22 PM
crowneagle
started a thread
What's does Wegener's have to do with potato salad?
in
General WG Chat
Want to be the smartest person at the cookout? Read on. Wegener's is closely associated with a deficient gut microbiome, which can result in...
see more
0 replies | 155 view(s)
07-08-2024,
01:21 PM
Alysia
replied to a thread
Donations
in
Website Issues, Feedback and Announcements
I sent the donation for Batman's birthday. Thank you, andrew, for keeping this home for us, weggies. God bless you.
see more
153 replies | 516809 view(s)
07-07-2024,
10:56 AM
crowneagle
started a thread
Dialysis and Lithium
in
Renal: Dialysis & Transplant
Not sure if this will help anyone, but a friend of mine on dialysis is very depressed. A little fact about dialysis is that it sucks lithium out of...
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0 replies | 190 view(s)
07-07-2024,
12:43 AM
Alysia
replied to a thread
pberggren memorial thread
in
Random Off-Topic Discussion
Happy heavenly birthdays to My beautiful Phil and to our dear Barbara ! Hi gilders, Thank you from the bottom of my heart for remembering...
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984 replies | 649773 view(s)
07-06-2024,
04:36 AM
gilders
replied to a thread
pberggren memorial thread
in
Random Off-Topic Discussion
Thought I'd be 2 days early to make up for being a few days late last year - Happy Heavenly Birthdays Phil and Barbara. Alysia, sorry for taking...
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984 replies | 649773 view(s)
07-06-2024,
04:18 AM
gilders
replied to a thread
New Member from Ohio
in
New Member Introductions And Stories
Welcome Lucylui. Although there was some delay in your diagnosis (like many of us), it sounds like not too much permanent damage has been caused,...
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3 replies | 545 view(s)
07-01-2024,
08:25 PM
Hopeful
replied to a thread
How to know when you're having a flare
in
General WG Chat
Hi All; I was diagnosed in 2009 (symptoms began 2008, maybe earlier). I figure I have enough experience to help with this question of knowing...
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196 replies | 198889 view(s)
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