Activity Stream

I'm praying that all will level out for you and you will feel better soon! Please take good care of yourself!

I know that some of the specialists here in Melbourne are starting to reduce the useage of calcium tablets. I no longer take them, but my sister in...

C'mon little kidney, you know you can do it :hug2:

Hi Alysia I heard an endocrinologist being interviewed on the radio this morning and she seemed to be discussing your issues. She was talking...

It sounds like you are making good progress and have some good suggestions already. I would add that the steroids are life saving and can help to...

Hi Wegwife It sounds like he may indeed have wegs. That said, he should be treated by a doc with solid wegs expertise. You may want to ask how...

Glad you were lucky enough to get an early diagnosis and proper treatment. Things now sound encouraging.

Nice guitar. National?

Can it be related to the amount of pred that you take ? Or to stress because of the decline in the numbers ? May your numbers be higher, May your...

It's hard to say. I'm still having good days where I definitely have more energy than before the transplant. But my bad days seem even worse than...

So sorry the numbers declined again. Thank you for the update. I wonder, when the numbers are down do you also feel a change or is it only the...

Oh, rats! I'm sorry to read that. Hoping and praying things turn around for the better again. You must have the patience of a saint, putting up with...

Oh snap!! C’mon kidney!! Do your thing!!

As mentioned in my last post, after weeks and weeks of a slow decline in kidney function, I eventually had a 4% increase, which we thought was due to...

An update: the calcium in my urine of 24 hours collection has continued to be extremly high, now it came back 432. The norm is no more then 250. ...

Any updates yet ? Did they check his C-anca and Pr3 ? Is he anca positive ? For me one of the first signs of a flare is when pr3 becomes above...

I made us root beer floats for Independence Day. Used diet root beer , frozen yogurt, frosted mugs and PAPER straws. Also had a yummy watermelon. ...

Good morning, thank you all. His headaches are a bit better, but night sweats still there. He received results from labs yesterday. White blood cells...

I'm wishing your son all the best for relief and discovering what is the cause.

I'm hoping that your son gets some answers for his headaches and night sweats, soon.

Sometimes labs take some time to catch up with symptoms, but in my case, with flares, the increased inflammation showed up in labs pretty quickly....

I had both headaches and night sweats at the beginning of when WG escalated and I was getting diagnosed. Both of those disappeared quickly with...

I'm so happy that you and your wife went on vacation to get away for a bit. It helps to reset your mind and body. I hope things keep getting better...

Happy Birthday to both of you, greatly missed by many!

Happy Birthday Phil and Barbara (and my wife who also shares their birthday). I would have liked to tell you all about my successful kidney...

Thank you. I believe labs are ok. I did not hear differently. Sent from my SM-G920V using Tapatalk

So sorry about his headaches and night sweats. I am glad they are going to check his head. Night sweats can be an indication to wg activity. But...

No worries at all about the sympathy. Thank you. I love the good advice. He's still having headaches and night sweats although last night thank God...