Activity Stream - Wegener's Granulomatosis Disease GPA Support Forum

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Today, 09:30 AM

Pete replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Happy belated birthday, O Grand Kahuna!!

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138 replies | 12640 view(s)
Today, 06:56 AM

annekat replied to a thread Anyone ever try CBD ?? in Medication

Dede, thanks for the info. I have a couple edibles lying around. Gummies. In past, got mild vertigo when I took a half dose, but just high with a...

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49 replies | 7508 view(s)
Today, 06:49 AM

gilders replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Happy Birthday! Hope you have another healthy year.

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138 replies | 12640 view(s)
Today, 06:21 AM

alexciasmom replied to a thread Anyone ever try CBD ?? in Medication

In regards to the vaping causing lung illnesses. The people who did the research to find the root cause have found it's in the additives used to make...

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49 replies | 7508 view(s)
Today, 06:16 AM

alexciasmom replied to a thread Anyone ever try CBD ?? in Medication

Just a fyi. For pain, and many other reasons Edibles are the way to go. Especially for those with lung problems. 🧡🎃💛

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49 replies | 7508 view(s)
Today, 05:57 AM

annekat replied to a thread Anyone ever try CBD ?? in Medication

Hi alexciasmom. I too got lost trying to find the original poster and what they asked. I was just relaying my experience at the time. This has...

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49 replies | 7508 view(s)
Today, 01:32 AM

NatriceRomeo replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Happy Birthday Andrew! Sent from my iPhone using Tapatalk

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138 replies | 12640 view(s)
Today, 01:25 AM

alexciasmom replied to a thread Anyone ever try CBD ?? in Medication

Hi guys. My docs have me using several types of cbd and cannabis items. My docs have been using my info for other patients. I am Extremely well...

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49 replies | 7508 view(s)
Today, 12:48 AM

Aneinu replied to a thread 20 year old son in New Member Introductions And Stories

Thank you. Yosef was discharged on Sunday after three iv-infused heavy doses of steroids. While he is still coughing up some blood (which is an...

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232 replies | 17530 view(s)
Today, 12:43 AM

Aneinu replied to a thread Abatacept/Abrogate clinical trial in Medication

Thank you Tom, My son is in this trial. As he still has flare ups they are looking to double the dose of Avacopan. I am curious to see what the...

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2 replies | 55 view(s)
Today, 12:18 AM

Aneinu replied to a thread In process of being diagnosed in New Member Introductions And Stories

I have never heard or researched limited gpa, and it sounds like Alysia is correct. You either have it or you don't. However, we were introduced to a...

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9 replies | 141 view(s)
Yesterday, 06:49 PM

annekat replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Funny, I was just talking about you and didn't know it was your birthday. I'm glad it was a good one including seeing your God daughter. I mentioned...

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138 replies | 12640 view(s)
Yesterday, 01:16 PM

annekat replied to a thread Newly diagnosed and Divorcing in Random Off-Topic Discussion

Yes, please do! Sent from my MotoE2(4G-LTE) using Tapatalk

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8 replies | 228 view(s)
Yesterday, 01:13 PM

annekat replied to a thread Mal Brown. Diagnosed 10 years ago but new to the forum in New Member Introductions And Stories

Welcome to the forum. Everyone's story is a little different, which keeps it interesting. This is a great group, and our members are all over the...

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1 replies | 24 view(s)
Yesterday, 01:01 PM

vdub replied to a thread Newly diagnosed and Divorcing in Random Off-Topic Discussion

Bad deal, indeed. Annekat and I are both of WA, so if we are anywhere close, let us know.

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8 replies | 228 view(s)
Yesterday, 12:56 PM

Mal started a thread Mal Brown. Diagnosed 10 years ago but new to the forum in New Member Introductions And Stories

Hi I am Mal Brown a 63 yr old grandfather from Byron Bay Australia. Was diagnosed 10 years ago with GPA and/or Lupus. It first went back to one...

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1 replies | 24 view(s)
Yesterday, 11:38 AM

andrew replied to a thread Donations in Website Issues, Feedback and Announcements

Thank you all! Very much appreciated and welcomed. :love:

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110 replies | 25090 view(s)
Yesterday, 11:35 AM

andrew replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Thank you!! Had a day traveling and getting ready for a conference. Yay! Saw my God Daughter last night though. Haven't seen her in months so that...

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138 replies | 12640 view(s)
Yesterday, 09:43 AM

me2 replied to a thread Donations in Website Issues, Feedback and Announcements

Happy Birthday Man!!

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110 replies | 25090 view(s)
Yesterday, 01:22 AM

vdub replied to a thread Donations in Website Issues, Feedback and Announcements

I'm on the road traveling, but didn't forget. I haven't been very active, but that means I'm having a good time. Happy birthday, mate, and cheers....

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110 replies | 25090 view(s)
10-22-2019, 08:18 PM

mishb replied to a thread Donations in Website Issues, Feedback and Announcements

Happy birthday mate, and thank you for keeping this group going :hug3:

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110 replies | 25090 view(s)
10-22-2019, 08:12 PM

mishb replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Happy birthday Chief I hope you day has been a head banging, awesome one

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138 replies | 12640 view(s)
10-22-2019, 08:08 PM

Alysia replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Happy Birthday andrew from pberggren1 and from me. We love you and are grateful to you. Thank you so much for keeping the forum working so well and...

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138 replies | 12640 view(s)
10-22-2019, 12:52 PM

HSD replied to a thread In process of being diagnosed in New Member Introductions And Stories

I asked my Dr. about travel to some 3rd world countries. Which lead to a discussion about vaccines in general. It came down to being advised not...

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9 replies | 141 view(s)
10-22-2019, 01:04 AM

Lea replied to a thread In process of being diagnosed in New Member Introductions And Stories

Yes, I had this concern. I have not gotten the flu shot and I always get it every year. I am not even sure if I can get a flu shot with the new...

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9 replies | 141 view(s)
10-22-2019, 01:02 AM

Lea replied to a thread In process of being diagnosed in New Member Introductions And Stories

Thank you Alysia. Yes, I read about "Limited GPA" and many agree with you; It is a wrong label to use, GPA is GPA. I think I am going to need a...

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9 replies | 141 view(s)
10-21-2019, 05:41 PM

Alysia replied to a thread In process of being diagnosed in New Member Introductions And Stories

Welcome to the forum, Lea. As far as I know, it takes 6 weeks for mtx to start working. Reducing the pred should be careful and gradual according...

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9 replies | 141 view(s)
10-21-2019, 05:23 PM

Alysia replied to a thread new in New Member Introductions And Stories

Meantime I checked with this lady. She said that now her docs think that after all her subglotic stenosis is not caused by WG but is idiopatic. So...

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3 replies | 94 view(s)
10-21-2019, 06:15 AM

Green Grass & High Tides replied to a thread Abatacept/Abrogate clinical trial in Medication

Hi, I'm not in the study but congrats to getting in. Phase III Avacopan Clinical Trials are expected to be published in December. ...

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2 replies | 55 view(s)
10-21-2019, 05:56 AM

Green Grass & High Tides replied to a thread Dr. Peter Merkel Philadelphia in Hospitals, Clinics, Doctors and Nurses

Here he is giving a wide overview of research in Vasculitis. https://youtu.be/VjRUvcJIr34

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15 replies | 1899 view(s)