Activity Stream - Wegener's Granulomatosis Disease GPA Support Forum

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Yesterday, 08:42 AM

Pete replied to a thread Haircut in Random Off-Topic Discussion

Hilarious!!!!!!!!!!

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6 replies | 72 view(s)
Yesterday, 05:45 AM

me2 replied to a thread Haircut in Random Off-Topic Discussion

I'm doing what the Big Kahuna is doing and cutting my own. I even have a name for this style of cut- the Covid Chop. Remember when bleached out...

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6 replies | 72 view(s)
06-03-2020, 02:28 PM

drz replied to a thread Haircut in Random Off-Topic Discussion

There is a great video about getting a haircut while maintaining a six foot distance I found hilarious. It was in a foreign language but no words...

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6 replies | 72 view(s)
06-03-2020, 01:07 PM

seied replied to a thread Haircut in Random Off-Topic Discussion

I've been cutting my own hair way before covid-19 became fashionable. :cool1:

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6 replies | 72 view(s)
06-03-2020, 10:01 AM

andrew replied to a thread Haircut in Random Off-Topic Discussion

Nice one Pete :) I have a very simple hair style that just requires a electric shaver. I bought one and have started doing my own hair. I'm pretty...

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6 replies | 72 view(s)
06-03-2020, 09:10 AM

annekat replied to a thread Haircut in Random Off-Topic Discussion

That sounds great, Pete. My county is just opening up haircuts and nail salons this week. I don't use those much, but it is a big deal to people I...

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6 replies | 72 view(s)
06-03-2020, 08:18 AM

Pete started a thread Haircut in Random Off-Topic Discussion

Got a haircut today for the first time since March 18. I was pretty shaggy. Every other chair in the salon was kept vacant. Everyone was masked. Hand...

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6 replies | 72 view(s)
06-01-2020, 10:50 AM

NatriceRomeo replied to a thread New to Wegener's, new to the forum in New Member Introductions And Stories

Oh my goodness! Susan, you have been put through the ringer! I say quite often Wegeners is not for the faint of heart, hearing your story reaffirms...

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5 replies | 199 view(s)
06-01-2020, 01:00 AM

John S replied to a thread Coronavirus and GPA in General WG Chat

Since I' was diagnosed I've always driven from Chicago to Cleveland to see Dr. Villa-Forte and get my Rituxin treatment. I stay at the...

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116 replies | 5716 view(s)
05-31-2020, 09:06 PM

jeto replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Hi everyone, Alysia annekat thank you for good wishes. Actually im here in Africa almost 7 months without going home, because of Corona, Im in...

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162 replies | 16604 view(s)
05-31-2020, 08:32 PM

annekat replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Happy Birthday, Jeto! I hope your life is going well. Sent from my MotoE2(4G-LTE) using Tapatalk

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162 replies | 16604 view(s)
05-31-2020, 06:13 PM

Harrish0I2 replied to a thread Medical Cannabis in Medication

Yes, I heard quite a lot about this from my friends, but I personally am categorically against it because many people use medical cannabis to relax...

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7 replies | 641 view(s)
05-31-2020, 02:59 PM

Alysia replied to a thread Happy Birthdays Thread in Random Off-Topic Discussion

Happy Birthday jeto. Have a blessed day. Where are you and how are you doing ? Thinking about you and praying for you.

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162 replies | 16604 view(s)
05-31-2020, 10:27 AM

Keith replied to a thread COVID 19 and Wegener's - musings in General WG Chat

I watched the webinar and got the same impressions. Enjoyed it, more data needed. Sent from my iPhone using Tapatalk

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9 replies | 615 view(s)
05-30-2020, 09:56 AM

Susan Jean replied to a thread send good energy and prayers my way in General WG Chat

Thank you all. Everything went very well with my first infusion. I started to have a little reaction (my mouth and throat began to tingle and feel...

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4 replies | 82 view(s)
05-29-2020, 05:23 AM

Masha replied to a thread send good energy and prayers my way in General WG Chat

Hi Susan Jean, Probably, by the time you read this you will be home. Both John and Dirty Don hit it right on when they told you what to expect. ...

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4 replies | 82 view(s)
05-29-2020, 01:26 AM

Dirty Don replied to a thread send good energy and prayers my way in General WG Chat

The infusion will go well. They take every precaution including snacks & drinks! The infusion goes slow so they can monitor your intake and...

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4 replies | 82 view(s)
05-28-2020, 09:46 PM

John S replied to a thread send good energy and prayers my way in General WG Chat

I usually have trouble sleeping after I get an infusion. I’ll have one night of restlessness and no other reaction. Rituxin has been my disease...

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4 replies | 82 view(s)
05-28-2020, 06:25 PM

Susan Jean started a thread send good energy and prayers my way in General WG Chat

:thumbup:I'm having my first Rituxan infusion today (1 of 4). I'm scared of having a reaction and hope it all goes well. I'm taking books, my laptop,...

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4 replies | 82 view(s)
05-24-2020, 02:08 AM

drz replied to a thread COVID 19 and Wegener's - musings in General WG Chat

How many watched the webinar? Lot of info presented but consensus seemed to be we don't know enough yet about most of the issues. Use common sense...

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9 replies | 615 view(s)
05-23-2020, 04:14 PM

Susan Jean replied to a thread New to Wegener's, new to the forum in New Member Introductions And Stories

And thanks to Andrew as well. I begin my first Rituxan infusion in a week.

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5 replies | 199 view(s)
05-23-2020, 02:48 PM

annekat replied to a thread Diagnosed yesterday in New Member Introductions And Stories

Hi, Jen, sorry for the delay. I've been having re-registration problems and can only use tapatalk, on my phone, which is becoming difficult due to...

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12 replies | 412 view(s)
05-22-2020, 09:42 AM

vdub replied to a thread Diagnosed yesterday in New Member Introductions And Stories

There's a few of us in the PNW, Jen. I'm in the very far southeast corner of WA. I'm sorry to hear you are joining our club.

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12 replies | 412 view(s)
05-20-2020, 05:38 AM

freakyschizogirl replied to a thread Abatacept/Abrogate clinical trial in Medication

Hi Me2, the abatacept trial finishes in about a years time. For me in the UK it isnt approved yet for WG but if i take it and it works for me...

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6 replies | 591 view(s)
05-20-2020, 03:34 AM

JenPNW replied to a thread Diagnosed yesterday in New Member Introductions And Stories

Hi Masha, it sure is a strange disease! So many different ways it can show up. I'm sorry you had tooth loss. My gum swelling made some of my teeth...

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12 replies | 412 view(s)
05-20-2020, 03:12 AM

JenPNW replied to a thread Diagnosed yesterday in New Member Introductions And Stories

Hey annekat, I'll definitely have to check out the Olympia Farmers Market next time I'm up there, maybe I can find you! I'm sorry to hear you have...

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12 replies | 412 view(s)
05-19-2020, 07:11 AM

drz replied to a thread COVID 19 and Wegener's - musings in General WG Chat

I just signed up for webinar on What We Know and Don't Know: Vasculitis and COVID-19 Description Join our vasculitis experts in a...

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9 replies | 615 view(s)
05-17-2020, 10:28 AM

Masha replied to a thread Diagnosed yesterday in New Member Introductions And Stories

Hi Jen, Glad you found us. Yes, initially being exhausted goes with the territory. As time goes on and you get regulated on your medication, you...

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12 replies | 412 view(s)
05-14-2020, 01:55 PM

Susan Jean replied to a thread Transplant in Renal: Dialysis & Transplant

I gave my husband a kidney 12 years ago so you have a special place in my heart. He is still doing well and his function is about 55%. Glad you're...

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278 replies | 34394 view(s)
05-14-2020, 12:11 PM

annekat replied to a thread Diagnosed yesterday in New Member Introductions And Stories

Jen, I don't think you should be too concerned about the new nasal symptoms as long as your doc knows about them. They are very common symptoms...

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12 replies | 412 view(s)