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Starting Ruxience from Tuesday March 2. 800mg x 4 weeks as induction treatment and TBD thereafter. Fingers crossed and hoping for a better result...

Perhaps you have already started treatment by now, but in case this helps... Per the protocol at my hospital, the infusion is started very slowly...

Got my first Pfizer vaccine 2 days ago. Only side effects are a sore arm and maybe a little fatigue. My last Rituxin was at the end of...

Thanks Pete. Just to add, when I say I’ve always had a slight dip, it’s probably only for the last 9 or so years. I also currently have a...

Hi Rae, I don’t have any experience with saddle nose deformity, but annekat and Alysia do. Hope they chime in soon.

Good news. I just hope the cost are much lower. In June of 2020 I got the 4 week infusion for Rituxan. The cost that the infusion center charged...

Hey All - I have been recommended to take this - Ruxience - instead of Rituxan. Anyone has had experience with it to share? Any indication of dosage...

Same with us. Got the second Moderna last week. I just had a sore arm, but my husband had a delayed reaction with fever, chills, aches and pains. ...

My wife and I got our second doses of Pfizer vaccine on 2/23. My wife had minimal reaction to it, but I had flu-like symptoms for about 24 hours....

I got my second dose of Moderna vaccine in January 28th. Had a Rituximab treatment this morning (500 units). “I love it when a plan comes together”

Update: I’m almost 48 hours past my second dose of Pfizer. I had some pronounced side effects yesterday — fatigue (I took a two-hour nap yesterday...

Thank you drz. In all honesty I’m praying that it turns out not to be GPA. I have been reading a lot of diagnosis stories on here and you are all so...

GPA can cause a variety of symptoms and can be very difficult to diagnose. It is important that you persist in your efforts to get an accurate...

I agree. My Chart (and other variations) is a wonderful tool. As I understand, there is a software basis to it that allows other medical services to...

My wife and I got our second dose of Pfizer vaccine yesterday. We’re so thankful to Ohio State University for the great process to schedule and...

Check with your local grocery chains to see what's possible in terms of curbside. My local grocer, Food Lion, has partnered with InstaCart to use...

I totally agree with you on everything. Curbside pickup is harder for me financially because everybody's charging Covid prices. Odd how today is a...

This really helps a lot, thank you! Sometimes I believe it's best to get advice from other Wegener's patients; especially if they've had it longer...

Looks like avacopan will be approved to treat ANCA Associated Vasculitis soon. ...

Just my $0.02, but I'd rather deal with COVID than deal with end stage renal disease. I'd be on some prednisone immediately if there was blood in my...

Dude, sorry to hear about the flare, it’s something we all have to monitor for. Taking notes was a good idea as soon as you felt strange. In answer...

Hello there, I live in the UK and had the Pfizer jab 3 weeks ago with no ill effects. Dr Jayne at Addenbrookes said to get the jab done and who...

Thank you, all for sharing your first Rituxan experience. It always very scary to go in for an "infusion" treatment... Finally I got my kidney...

dalatingod My GPA journey also started with eye involvement - scleritis. Opth started with prednisolone drops to observe effect for 2 weeks -...

I have had both Pfizer shots with no side effects. I stopped MTX for 2 weeks for each shot. Here is a good summary of thoughts regarding MTX...

jmq: just curious, you mention 3 years remission but only 2 years of Rituximab. Am I reading this right? Were you taken off RTX maintenance, and...

Hi Meredith, Regarding the waiting period after infusion...from what I understand you need to have an active immune system to react to the...