Activity Stream

What makes me even more nervous is that our Rituxin, which I really need and receive, knocks out our B cells and in order to fight COVID we must have...

I need to keep reminding myself that the vaccine does not make me immune. Vaccinated people can still catch the virus. Vaccinated people can still...

Over here, findings from most recent data has resulted in all adult household members living with someone who is immunosuppressed being able to get...

Why is it ok to call it the UK variant, the South Africa or Brazil variant, but not ok to call it the China virus? Asking for a friend. :-)

This makes me a little nervous. I got 500 mg of rituximab four weeks after my second Pfizer shot. Autoimmune-disease drugs may reduce vaccine...

Showing the Boss a little love. Thanks Andrew for all that you do for us.

Hmmm, wandering around looking for things....nope, didn't find cryotherapy...part of having WG is looking for things that aren't there...we want to...

For me, MTX worked to get my iritis controlled for an year before things flared up again and this time kidney was involved. That made my rheumy...

My GPA diagnosis was also accidental in Aug 2019. I was all healthy, extremely active and keeping away from meds as much as possible until one day on...

Hi everyone, I haven't logged on for ages but great to read all your supportive comments during these uncertain times. Despite our very best...

Some people with GPA have done amazing physical feats, much more difficult than usual marathon, so recovery and future activity is very varied. It...

I started with a sinus problem, and then my left ear started clogging. I saw three doctors about my sinus problem and they gave me the typical...

I am 58 years-old, and about to retire - high school teacher. Mine started in August of 2019, and I considered myself very healthy. I was training...

I don't know if there is a common thread but I was very healthy when I developed GPA 42 years ago. There are way better treatments available now so...

I believe that the answer for me does not rely on choosing the correct medication. Instead it has relied on choosing the best doctor to treat me. I...

Lea I went to rtx from mtx because I was having too much fatigue from mtx. I was on both for a year, but my doctor decided I only needed rtx going...

Pete, what made you go from methotrexate to rtx? This is my second year with gpa, and I am not taking Prednisone anymore (started with 60 mg). I am...

Hi smileyurbs Yes - completed all 4 first infusions and went well. The numbers will show improvement over time I am told - but I am feeling good...

:ohmy::ohmy:

I think it is saying this: Patients with inflammatory rheumatic diseases (IRD) may be more likely to acquire severe pneumonia due to COVID-19,...

I read drz post about theFrench study three times and do not understand it.

MARCH 29, 2021 Rituximab therapy linked to more severe COVID-19 in patients with inflammatory rheumatic and musculoskeletal diseases: Study...

My creatinine is in that range, almost always...Mayo doesn't think enough of it, considering other issues, to go after it right now...they'd rather...

Thank you Don. I see my nephrologist in a couple months. I will have her order those labs. It was my rheumatoid Dr who I go to but I just have...

My numbers haven't been terribly consistent over the years, but my docs aren't numbers chasers. With RTX in your system already & no other side...

Thank you for your story. I’m coming close to one year with GPA. It gives me strength to keep going on. Getting over my first flare-up. Got my first...

I get notices from an AI awareness group, have no idea who they are, but something I 'looked' at once. No effects, something to think about once in a...