Originally Posted by
Rose
Yes, I was. I had 6 x 1 monthly IV cyclophosphamide which got me in remission. Then I started the imuran which I was on for 5 weeks and had a bad reaction to. Following that I started on Cellcept which has kept me in remission for almost 6 years.
My spikes in temp was a symptom of he vasculitis which is common in untreated WG I dont know what my blood work was on diagnosis. Like most of the other sufferers I had never heard of Wegeners and knew nothing in those early days as to treatment, monitoring etc....and too sick to care!
It could be that the Cellcept has not kicked in yet. I take 1.5g daily, double your mothers dose but I am also much heavier (pred weight which I cannot shift though only take 2.5mgs daily for the past few years) Hoping that it starts to work soon and that Tuesday's blood work shows some improvement
Rose
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