Hi everyone,
I was diagnosed in 2010 with sinus/aggressive lung involvment, went into remission with Cytoxan/Pred. I was on Imuran for 3 years and relapsed Nov. 2013 with lung involvment. I had 4 RTX infusions/Pred. I'm back in remission YAY! But now I'm trying to get back on a maintenance med and I'm having big problems. So first I tried MTX and I had terrible headache and nausea/vomiting. I switched over to cellcept and I had terrible diarrhea/cramping and was constantly lightheaded. I stayed on the cellcept for 4months trying to see it I would adjust to it, but the side effects just got worse. I was completely off the pred as of last month, but my Dr. Langford had me stop the cellcept, back on 20mg of Pred and they are deciding what to do for me. My question is: I had no side effects from the Imuran and would like to give it another try. ( I was on a very low dose 75mg- bc my WBC would drop when I went higher. I was also on Bactrim at the time and think that made my WBC low also.) I think that I was on too low of a dose and that's why I relapsed. So has anyone every relapsed on there maintenance drug and then went back on that same drug and stayed in remission for a long time? I appreciate any help. This is so frustrating.
Thanks
Tracy
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