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Thread: Rare Patient Voice

  1. #1
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    Default Rare Patient Voice

    I don't know if anyone has heard of this or not. They help patients with rare diseases voice their opinions through surveys and interviews to improve medical products and services. It's for patients and/or caregivers. In exchange for your help and opinions you earn rewards. I just got a $10 gift card to dunkin'donuts for signing up. There are other choices besides DD. That's just what I chose. If interested it only takes a few minutes to sign up and it will allow our collective voices to be heard.

    If you are so inclined you can indicate that I'm the one that referred you. My last name is Yarbrough. We need to be heard.

    Patient Panels, Patient Community, Pharma Market Research | Rare Patient Voice
    Cindy



    Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers


  2. #2
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    Just signed up, used your name as referral...sounds interesting, let's see what they do with it.
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  3. #3
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    That's what I thought. A friend that is helping me with doc stuff sent me the link. Thanks for using my name.
    Cindy



    Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers


  4. #4
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    I signed uo too.

  5. #5
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    Me three!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  6. #6
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    A friend that is helping me
    THAT is WHO, WHO, whoooooo! The English teacher is awake this morning!!!!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  7. #7
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    Just signed up. Put you as a referral! Anyone hear from them yet?

  8. #8
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    Quote Originally Posted by Dirty Don View Post
    THAT is WHO, WHO, whoooooo! The English teacher is awake this morning!!!!
    OMG, Don, are you an English teacher ? oh, my poor gramer and spelling
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  9. #9
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    Quote Originally Posted by Miska View Post
    Just signed up. Put you as a referral! Anyone hear from them yet?
    I got my gift card in about 4 days in my email. So check spam folder occasionally. Although surprisingly my didn't go to the spam folder. Mine was sent from Dunkin' Donuts because that was the one I chose, so it will be sent from whatever company you chose.

    Thanks all for using my name as a referral. Appreciate it.
    Cindy



    Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers


  10. #10
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    Got my Amazon card this morning.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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