Pediatric WG specialists

[WeggieParent]

I haven't seen any posts specifically listing pediatric WG specialists and they are hard to find! (Most WG specialists only see patients over 18 yrs old.) I thought I would throw out some names if anyone is searching. The VF recommended Dr. Steven Spalding (rheumotology) at the Cleveland Clinic. We drove up to see him over the Christmas holiday for a second opinion and loved him. While we were there he scheduled us an appt with Dr. Paul Krakovitz (Otolaryngology) also at the CC. They were both extremely knowledgable about WG in children.

[elephant]

I love Cleveland Clinic and so glad you went. Thanks for sharing this information.

[WeggieParent]

There are so many on this forum that talk about Cleveland Clinic that I was sure there were probably several of you sitting in the waiting area with us!! I should've stood up and yelled 'raise your hand if you're a member of the WG forum'!!!

[Sangye]

WeggieParent, I asked Dr Seo (JHU) about pediatric Wegs docs a couple weeks ago. He made several comments which I posted here:
http://www.wegeners-granulomatosis.c...estions-2.html

He mentioned a ped rheumy at CC but it was a different one. I'm overjoyed that you got to see Dr Spalding!

[whatthewhat]

We are new to this world, but my daughter's diagnosis and treatment are from the pediatric rheum team of Children's Hospital Los Angeles. They know their stuff.

[mishb]

I'm happy she is receiving great treatment wtw

How has she been doing these last few weeks?