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Today marks five years of treatment
Today has been a rather weird day for me. I am truly grateful that I made it to this marker. I have been recalling all the different states of physical and mental ups and downs of the last 5 yrs. or more. I remember at 2 yrs. of treatment, I finally came out of denial, that it was going to be a lifetime thing that it was not just going to disappear suddenly. I really felt early on that I was going to be in remission right away and would not have to take all the meds for long. I remember the Doc kept repeating to me, baby steps, this treatment doesn't work for everyone, so we have to switch to this. I have taken every treatment so far. I have finally gotten to 8mgs of preds, RTX every 6mos, Bactrim MWF and the typical Vitamins. I would say that things have slowly improved and it has been baby steps. I have developed a lot of complications from not being able to get off of the preds and also had COPD to deal with, but I'm here. I am so thankful for all the fellowship and friends that I have found thru this forum. I know that over the years, if it weren't for the sound advice and caring words, I would have not gotten thru some of the mental ups and downs as smoothly. So thank you all for being here for me!
Jana
![thumbsup](images/smilies/RpS_thumbsup.gif)
Do not fear anything, just do it afraid!
It does not matter how slowly you go, as long as you do not stop!
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![Quote](images/misc/quote_icon.png)
Originally Posted by
Jaha
I know that over the years, if it weren't for the sound advice and caring words, I would have not gotten thru some of the mental ups and downs as smoothly. So thank you all for being here for me!
![thumbup](images/smilies/RpS_thumbup.gif)
Not easy but it doesn't suck as bad as the other option. Keep it up.
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Well done Jaha, 5 years and still going strong.
like I keep telling everybody,
everyday you get out of bed...... is a good day.
Regards Woz....
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As you have also been an encouragement to all of us. Best to you on this anniversary.
Dale
Dx Aug, 2009 Remission June 2010 until 8/1/2014
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Well done Jana - keeping ahead of this dog is an awesome thing.
Keep up with being awesome
Keep Smiling
![biggrin1](images/smilies/RpS_biggrin.gif)
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
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Knowing how to think empowers you far beyond those who only know what to think. -NdT
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Keep on keeping on, Jana!! One.day.at.a.time!!!
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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Yay well done Jaha!
Like you I thought my 5 year anniversary as significant and congratulations go to you!! Keep on taking those baby steps and good luck with the pred reduction (its only a number!)
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![Quote](images/misc/quote_icon.png)
Originally Posted by
Jaha
Today has been a rather weird day for me. I am truly grateful that I made it to this marker. I have been recalling all the different states of physical and mental ups and downs of the last 5 yrs. or more. I remember at 2 yrs. of treatment, I finally came out of denial, that it was going to be a lifetime thing that it was not just going to disappear suddenly. I really felt early on that I was going to be in remission right away and would not have to take all the meds for long. I remember the Doc kept repeating to me, baby steps, this treatment doesn't work for everyone, so we have to switch to this. I have taken every treatment so far. I have finally gotten to 8mgs of preds, RTX every 6mos, Bactrim MWF and the typical Vitamins. I would say that things have slowly improved and it has been baby steps. I have developed a lot of complications from not being able to get off of the preds and also had COPD to deal with, but I'm here. I am so thankful for all the fellowship and friends that I have found thru this forum. I know that over the years, if it weren't for the sound advice and caring words, I would have not gotten thru some of the mental ups and downs as smoothly. So thank you all for being here for me!
![thumbup](images/smilies/RpS_thumbup.gif)
Thank you for sharing your story here. Just reading how it took 2 yrs to finally come to terms has given me hope. I am too hard on my self and need to take baby steps like you did. What is Bactrim? is this an antibiotic they use to treat copd when having gpa? I think I have read this some where on the Vasculitis foundation site . I think with all the throbbing I'm having it might be a good idea to try it and see if symptoms go away. again thank you for sharing
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