Hydroxychloroquine?

[freakyschizogirl]

I some times wonder about what is going on with Wegs in my body when I have some increased residual symptoms like nose bleeds, headaches, dental sensitivity, joint pain, eye pain, fatigue, etc but labs don't show much Weg activity and the maintenance drugs are still working enough so there is no new damage indicators to lungs or kidneys.

These fluctuations in residual symptoms seem like mini flares to me and they often result in an increase in my maintenance meds of AZA and pred but my Doctors regard a serious flare as one that requires RTX so I guess these mini flares are still regarded as a normal part of a drug induced remission. But is there still damage happening? And if you feel like crap, is it still a good remission?

Hi drz. I can't seem to get a straight question about my symptoms. They keep saying there is something else going on with me but obviously it's not showing in my bloods but symptoms are on the increase. The disease isn't well controlled and its getting very emotionally draining after a year being like this and feel no closer to feeling better