When my kidneys were failing from Wegs in 2010 I started with RTX IV. I had two infusions and then they switched to CTX because the RTX was not working fast enough and then to the oral CTX because was easier to adjust to avoid adverse reactions. I had a bad reaction to some treatment back then but it was hard to determine what caused it but probably the CTX IV. I also had lot of blood transfusions and plasma exchanges and was able to avoid dialysis and my kidneys eventually recovered after a couple years to near normal function. I also had serious lung problems at the time and require a couple weeks or so of intubation just to survive. I believe the Weg kidney expert my team consulted was Falk at NC. Specks was lung consultant at Mayo. Both are known Weg experts.
My treatment was considered very aggressive and I recommend an all out response to the flare to try save your kidneys and prevent more serious damage to your body.
Knowledge is power! Wisdom is using it to make good decisions!
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