New Member/Thanks to all of you

[Aunnie]

Hi Everyone.
I've been reading your chats for about a month now and have really connected.

A bit of history:

Initial symptoms,sore throat (it lasted for 1 year Dec. 06-Dec 07),leg pains,nosebleeds,extreme fatigue and skin lesions.

I was finally diagnosed July 9th 2007.From Internist to Infectious Disease Dr,to ENT,to Rheumy, to WG Specialist in Boston.

I started with Pred & Methotrexate got Neuropathy in Fingers,Then on to CTX orally.I was sick everyday on CTX,so they tried Ctx IV, had 8 treatments and ended up in the hospital totally dehydrated.

Then onto Imuran & pred.
Then Cellcept and Pred.
Now Cellcept,Pred.and Orencia infusions.

I have never been in remission,but there is always hope.
My current symptoms are nasal crusting,nose bleeds,ear lesions and pain,muscle pain,sore throat again and of course FATIGUE.

I've been doing some gardening,but always know my limits.I'd love to be working and golfing again.......


You are a very encouraging group and thanks for being here for all of us.

Fondly,Aunnie