Different Medication?

[Sangye]

Brooke-- You RAN up the stairs?? I made it up one flight of stairs a month ago. Took a few minutes and I couldn't repeat the performance.

I think I've asked this before (maybe a few times...) but do you have a rheumy overseeing your care? Pulmys or ENTs are not skilled to manage Wegs care. They are specialists you go to for those areas, but the rheumy should coordinate all care and decide on meds.

[Brooke]

Hi Sangye, yes I ran up the stairs! I can do it anytime I want just sometimes I will be a lot more out of breath than others. I do not have a rheumy overseeing my care. I think I will ask my doc at mayo next time I see her who she recommends for me to see.

[Jack]

If I could run up stairs, I'd be quite happy with that. Even at my best since diagnosis I have only been able to walk up and now I need help from both hands.

[jola57]

Although I will never be able to run up the stairs because of my neuropathy, I can go up 1 flight without any problem and 2 with some huffing and puffing. This is great after not being able to go up 2 stairs !!!