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Newbie :)
Hello,
I just recently joined the forum but I've been lurking for the past year & thought I would introduce myself. I was diagnosed with GPA in Dec 2016 after 3 years of symptoms. I was finally diagnosed with subglottis stenosis which then led to the diagnosis of GPA. I've had the surgery for the stenosis twice this year & it appears to be narrowing again. I have an excellent ENT in Toronto who is very familiar with Wegener's patients. He in fact referred me to the rheumatologist that diagnosed me. I'm currently on Imuran, Prednisone & just finished Rituximab infusions one month ago. Since the Rituximab I've had worsening of numbness in my hands & feet & dizziness. Has anyone else experienced this with Rituximab? My rheumatologist says it's not related.
Any info would be much appreciated.
Jacqueline
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