Hi! Our daughter was diagnosed at age 14. She was a competitive athlete before she got sick, and concurrent with all her other symptoms was PN, so I always just say (along with her doctors) that it was part of the Weg. She did have physical therapy, both to specifically address the PN and also to regain muscle tone. I'm so bummed you don't have access to PT, so I am moved to write what I remember of her exercises. First, I was fascinated by the PT just taking a regular safety pin, and without our daughter looking, poked her in the bottom of her heels with the rounded end and with the dull end. The foot with the worst PN could not differentiate between the two ends. That was such a visible demonstration to me of what was going on. I remember they massaged her feet a lot, and her dad did also at home in between visits. There was an exercise where our daughter would dump about 70 or 100 marbles on the floor and then pick them up with her toes and put them into a box. There was an exercise where she would sidestep back and forth in between lines. Anything that encouraged nerve stimulation (going barefoot or having very supportive shoes) was helpful. And it all really did help. Then again, she was a kid with faster healing! Anyway, I hope this helps you. I remember the PN was very frustrating for her.
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