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Hello, I am Magnolia. I was diagosed with partial /weg in 2002.
Nice to meet you all !!I hope I can contribute with my experience of this rolle coaster ride....and learn from your stories.
After my initial flare and 6 months of pred. I was o.k. and remained so until 2007. Then I had kidney involvement, and ever
since have taken every immunosuppressant plus pred.which you are all familiar with. this year, since Sept/14 to last month,
was given by a new (wonderful) rheunatologist,Rituxan.My kidneys improved initially, now they are not so hot
Anyone have experience with Rituxan? I am very active and this disease really curbs your life.Its hard to find a partner,dont you think?
Hope to hear from you soon,
Best of health and resilience,
Magnolia
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