I was diagnosed by elimination as well. When the docs said I had wegs, I asked if they had another diagnosis. When they said no, I asked how they would verify it. They said open lung biopsy. We decided to treat for wegs and see if I improved. When I did get better, we agreed that I have wegs. My meds at the time were 50 mg cytoxan 3x/day, 60 mg prednisone/day, and bactrim daily.
After a flare almost two years ago, I've steadily gotten better - to the point where I feel as well as I did before I got sick.
The best advice I've gotten about dealing with wegs is, "Take your meds as directed and live the best life you can." I've done this. I would also find a doctor who specializes in Vasculitis.
Good luck and better health.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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