New member from Australia

[annekat]

Welcome, Inge. It all sounds like such a nightmare and so familiar at the same time. It is true that Wegs can sort of "smolder", even for years, and then lash out, at which point we may be diagnosed. That happened to me and many others on here. Funny, my ENT also called me a "mucus factory", long before anyone had an inkling of my Wegs, because of all the sinus issues I was having. It does sound odd that they are calling it "lite", yet you are still in the hospital after 4 weeks. It sounds to me like you could be getting hit a little harder with both the MTX and the pred. But Michelle says you are in good hands and I believe her.

In any case, if you have to have Wegs, I'm glad you are here. This is a great community of great people for all the support, information and friendship you could possibly hope for. I don't know what I would have done without it these last 3 years; I would certainly be pretty much in the dark. By reading our experiences on here, you will get an idea of what to expect, and it is likely something a lot more positive than you might have thought. Take a cue from Don, who pretty much feels like his "old self" after a couple of years. And many of us are doing pretty well at carrying on with our lives once we have received effective treatment.

[ingemlb]

Thanks Anne for your encouraging message. Yes I am getting the idea I need to stop worrying so much lol. It's all a bit scary. And to boot I am scared of how I will manage from home. Like here, doctors see you every day. They may not be the primary specialist but they all react and get things done. Like the Gastroenterologist when I mentioned this forum and advise that maybe I am on too low a dose of Prednisolone hence the pain returning got straight onto the Rheumatologist by phone (it's Sunday) and within 5 minutes i was swallowing an extra 5mg of Prednisolone. How will that all work when I am at home and symptoms are flaring? Guess I need to have that discussion with my Rheumatologist who will be the main specialist treating me. Glad I am here too. Certainly makes it easier to learn from others in the same boat Thanks again Anne.