Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Sorry to hear about the new disease but I understand the risk for several forms of cancer increases somewhat after treatment for Wegs. It is just very unfortunate when it happens but many people get cancer without having any treatment for Wegs so generally I don't think it is a worry we need to take on till it happens. The one good thing is we have some experience in getting and dealing with treatment for serious chronic diseases which should help us get through it. Best wishes for successful treatment and better health soon.
Knowledge is power! Wisdom is using it to make good decisions!
That sucks Dale. If only you were less attractive then you wouldn't be attracting these other conditions, but hey, what's one more
I also went through 6 months of dealing with a leukemia diagnosis, until they realized that it was the inflammation caused by WG, that was giving false readings.
Best of wishes to you with your new treatment regime
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
Just wanted to give a shout out to Rebekah Wade and Sheila Martin. Sheila completed the Columbus Marathon and Rebekah ran the Columbus Half-Marathon today. They're great examples of not letting our dumb disease keep them from competing!!
While most of us won't run long distances, getting in better physical condition can only help improve our quality of life!
As the Nike ad says, "Just do it!"
Last edited by Pete; 10-19-2015 at 03:24 PM.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
Thanks, Pete! This was definitely the hardest race for me, but my favorite by far! For part of the run I couldn't even feel my legs... and they are killing me right now. I know I'll be super sore tomorrow (and for the next few days), but giving the kids at each mile a high five was so worth it! I am so glad I got to meet up with Sheila for a quick picture before the marathon, too!
Nothing can break you; you are much stronger than you think... look at what you've already survived.
Such an awesome achievement Rebekah and Sheila.
Well done
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
Our marathon runners!!
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
Happy New Year -belatedly!!
I'll repeat the invitation made at the top of this thread for those who want some virtual support in an effort to get more fit.
I have been a bit of a slacker the past few months. My son and daughter-in-law sold their starter home and bought a newer home during 4th quarter of last year. That meant my wife and I were providing child care for three kids 4 yo and younger 3-4 days a week so they could get their old house ready to sell. Different kind of exercise.
I'm now getting back into the swing of things. I go to the Y 3x weekly and walk for about 35 minutes. Today, I resumed light resistance weight training. Hope to do this once or twice a week and swim occasionally.
What's everyone else up to??
BTW, tomorrow (12 Jan) is the fifth anniversary of my GPA diagnosis. I continue to do pretty well. I hope everyone on here can see improvement in their health this year.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
Pete, that's great. But happy anniversary seems a little off to me? I'm up to no good, and hate excersise, always have. So there's my my answer, regardless weather you wanted it or no.... Pete, I'm happy for ya..... Deb.
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