RTX outcomes - my list

[Alysia]

Here I am 3 months after my first RTX. Although my WG doc told me to expect good changes until 4 months after, it is good time to check outcomes until now:
Nose:
Before: bleeding couple times a day, even when sneezing. Very big scabs (bigger then my nose). Nose full of "pieces". Cant breath, cant smell. Every touch in nose is very painful. "saddling".
After: bleeding stopped. No more scabs. Nose is "clear" inside. I can smell. I can breath. Almost no pain. Small "provisions" in the morning. I don’t know if "saddling" stopped or not yet.
Lungs:
Before: coughing all along the day. Short of breath.
After: much less coughing. Still have it 3-4 times a day. Breathing is better.
Joints:
Before: red, swallow, aching.
After: only a little bit rigid in the morning. Later become o.k.
Ears:
Before: aching. Inflammations.
After: o.k.
Eyes:
Before: red. tearfull. "heavy" feeling. although an expert eye doc said that there is no eveidence to WG in my eyes, my WG doc said that the redness is a symptom. maybe it is like coughing without new findings in the lungs.
After: redness is getting less and less.
Colon:
Before: a lot of diarrhea. Cant eat a lot of things. Pains.
After: less diarrhea. Less pain. Still having them in less frequency. Still cant eat a lot of things.
Fatigue:
Before: very tired.
After: still very tired. Maybe even more. Maybe something is going on inside the body, some "battle" which cause terrible fatigue.
Blood tests:
For the first time in years my c-anca + PR3 are normal !
Pred:
Before: changing doses 5-30mg.
After: 5 mg. my doc said I can start tapering down. I didn’t start yet. Afraid of it.
State of mind:
Before: despair, helplessness, depression, anxiety.
After: hope !
Others are invited to share their lists….