Hello all, I am a fairly long term sufferer but it has progressed very slowly.
It started with scleritis in 1991, which came and went for years, then about six or eight years ago it started to affect the feet and legs as pains and swellings, and was finally diagnosed as vasculitis when I came up in purple spots. The next flare was also in my lungs, and a biopsy showed it to be Wegeners. The last flare, last August Bank Holiday, (They always seem to be bank holidays, I have done Christmas, Spring bank, etc.) caused a lump behind my right eye and I woke up blind in it one morning. A course of iv cyclophosphamide later and now I have moved from cellcept to methotrexate and am working my way into that, 12.5 mg so far. I have partial sight back , but when the eye works well I get double vision..
I have been a regular lurker one degree detached for some time, the mem-sahib visits and reports back, a writing forum is normally the extent of my web use.
Pleased to meet you, hope to know you better, all the best, Olly.
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