Originally Posted by
Elena
Well, that sucks. I had hoped going off pred would solve much of my "problems." Not that I see being without pred in my near future anyways. Seems like my docs are veery conservative about pred. I mean, I've never gone below 7,5 mg in almost 3 years and I've been in remission for at least a year now. Although I've never heard my docs use the word remission.
I am always amazed by how much knowledge you have, Sangye. Thank you for all the good advice and support you give us
Hi Elena - i've been on pred over a year and on 5mg for 8 or 9 months. I am told i am now in remission and tapering down to 4mg at the moment. Everyone is different and it depends on your circumstances i'm sure. I am by no means an expert on this subject but it does puzzle me why they arnt tapering you down slowly. Any thoughts Sangye/ Al?
"I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps". Jack
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