How do they decide you're in remission? It depends
As with many things WG, it's a individual thing based largely on blood results, particularly ANCA (for those ANCA positive weggies).
It's probably a mistake though to hang out for remission. It may never come. That's not to say you'll never feel better, that's a different thing. I feel great but I'm not in remission. I know this because my ANCA and other blood results is still high and I bleed from curious places when I've had a hard day I know all about nasal bleeding, aye yai yai! Funny though to see my work colleagues faces when I blow my nose and the tissue goes red. Teehehehehe. I always act like its a normal thing and don't even react to the blood. That spins them out even more. We weggies have to make our own fun.
I'm not on any Pred and I'm on a low-ish dose of Imuran yet I'm still nowhere near the 'big R'.
The best way to stay feeling ok is to work within your limits (yes, do what I say and not what I do ). Take it slow/steady even if you feel ok. You feel ok because you're taking it slow/steady. The best thing I find that makes me feel great is to go for a walk. Doesn't have to raise the heart rate to 200 but just a walk to 'get the blood circulating'. It can make you feel great and not screw you up.
So, my advice is to accept your nice, shiny 'new normal' and let remission take care of itself. Yes, I know, easier said than done.
Forum Administrator
Diagnosed March 2003.
Currently but not permanetly residing in Canberra, Australia.
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