Thanks for your reply bdawg
will look out for the mood swings.
Had an interim blood test this week but won't know the results until I see the doctors in couple weeks
so far have had some bits and pieces (lol) chesty cough /sore chest but that could have been from a chill,
touch of dizziness, general cough, aches and pains (is it Wg, the myco or Getting older) tiny red dots which I think are called petechae or something - not a lot but, bit of blood in nose and touch of crusting.
What I think I have learned from reading others experiences with treatment, is that sometimes we get ummmm resistant
to the particular medication after a while and it doesn't then keep things at bay. And then our doctors try out an alternative to see if that works/helps which I guess is what is happening with my treatment at the moment. They did suggest rituximab next maybe. What I wonder is what happens if we become resistant to all these........
- probably best to not think like that and be positive instead.
Seems though its a hard road cause I have also read that everybody with Wg can be different. Hard for the doctors to work out best treatment.

Anyway see what my doctors say in a couple of weeks. I wish Wg medication was not so toxic but.
Thanks everybody for your input on this. It helps to compare and see what others are experiencing with their treatment too. It is very much appreciated.

Thanks

Angela.