Are your lungs or kidneys involved? With the possibility of WG, have they looked at your lungs or kidney function? My symptoms started with a stopped up ear in early spring, and the docs said there wasn't anything to do about it! I had autophoney too, which was terrible!! Then before I knew it I was running a fever and having chest pain and ended up having multiple tests, including an open lung biopsy because my lungs looked so bad, and a 15 day stay in the hospital. The biopsy was what showed the WG, I had never even heard of it. It my doc had thought to check my ears more closely months ago maybe I wouldn't have the lung involvement! I wish you well!