Hi Alysia, my issues all seem rather minor when I compare with others. And yes... things are improving. The remaining back and knee pain are not strong enough to take pain killers just want to figure out where they are coming from to rule out any flare building up as I am on a mission to reduce the pred.

The sinus issues are so much better since starting the bactrim and regular rinsing. Only seeing the ENT to bring him up to speed re the Wegener's and work out how regularly he should monitor progress. considering how nasty this Wegener's can get towards the sinuses I figure being ultra cautious is the best approach.

I am only organised because otherwise I forget everything