Hello everyone.
I am glad to find this forum.
Thank you and the founders of this site to give the patients useful information and the opportunity to exchange their ideas and experiences.
I have a question about healthy lifestyle for Wegeners patients to prevent relapses.
How can I get in touch with a top Wegeners researcher to discuss my life plans?
Actually I have been dealing with this condition for 12 years with several relapses, severe side effects of medication and illness and 8 surgeries.
Finally, last winter I got rid of Prednisolne and now the dosage of Azathioprine is about 37.5 per day.So I guess the condition is under control now.
But I have read in several research papers that over 50% of patients will experience relapses after remission!
So, a controlled and healthy lifestyle is the key to prevent relapses!
But how?
I am admitted to a graduate engineering program in the US , but I am so scared to start the program, because ,as I have read and experienced; patients should have an easy going lifestyle, have positive mental state and should be away from stress, weariness and sleeplessness. They should spend time on their regular exercises and Yoga exercises, visit their doctors and have laboratory records (ANCA,CBC and Urine analysis...) every month or two; take their medicines regularly, be checked up every now and then by other specialists, have Sonography or Mammography records every year (for women), and have a healthy regimen(preferably organic foods and drinks).
But as it seems, competitive lifestyle of graduate studies is completely against this situation and can cause relapses easily.
Besides, I guess this method of controlling the condition which I mentioned above, should cost a lot for an international student in the US (even with student medical insurances) and would be so time consuming.
I would be thankful if you could kindly help me find the answers to my questions.
With regards,
Bookmarks