update from my doc appt friday

[firecracker]

I just got the call and my appt for the scan is this thursday. They are doing an 830am injection, then another at 845 then i come back at 1 for the scan. They are not doing the Indium one unless they feel necessary after looking at the first scan.

[Jack]

I can do little more than send you my best wishes and thank God that we have a free National Health Service and a degree of job protection here in the UK.

[jola57]

Good luck on thursday, tell them to go easy and take their time with the injection.

[Doug]

Yes, it can be unpleasant if given too fast.

[firecracker]

I got to my bone scan appt thursday to find out that they really do indeed want to do the three different scans instead of just two. I did a few quick ct scans then went to labcorp for my rheum doc then back to usf for the lady to pull a huge thing of blood from me and two little tubes also. They sent them to the lab to pull the white blood cells out and put the indium into or on..them, then i went back a few hours later for more scans, then she put the maybe tablespoon amount of dyed white blood cells back in thru the iv she left in and said come back 8am sharp in the morning. i ended up with one hole in my right arm and two in the left and a bunch of bruises on the left one from my "generous vein". lol. besides the .. i dont know... half a quart it seems like, of blood she had taken, and the other .. i dont know... 5 tablespoons that shot out of the iv on the floor.. i was a little dizzy but i actually had red blood for once instead of "chocolate" blood i have had for awhile. obviously not anemic for once in my life. yippie. they did a full body scan at 8am then the "obnoxiously" close ct bone scans. they took about hour and 15 mins total twice and maybe 30 or 40 mins the first set. talk about sore and hurting.. just from laying still for so long and laying flat which i normally cant do. so im waiting on the results. ive felt decent for a few days. i got home from work today and found a pretty big loss of tissue in my nose after the huge loss.. came out with rinsing. talk about ruining my day. i dont see or feel inflammation in my nose. it doesnt hurt much at all in fact for once but this really makes me .. depressed. like.. i instantly grabbed a beer. i know its not a good thing with the meds or for emotional distress. good thing i dont really like alcohol.. the taste of it yuck. i feel so bad for my boyfriend having to put up with me being sick or not being able to do .. much at all, go out in the sun, sleep laying down like a normal person. i went from feeling emotionally happy for once to wanting to cry like i just lost my best friend. this rollercoaster.. sucks. i cant imagine what will or wont come back on the scans. i want to know... but then again.. its like.. what else!!!??? at least my eating binge from getting back on the steroids has let off some. so anyway.. ill update again hopefully tomorrow. then again.. the longer it takes to find out .. the better the news im sure. my boyfriend led me to his sisters friends or someone she knows.. story. in case you have people like i do that just dont understand what it feels like to live like we do.. here is a really good story to explain. http://www.butyoudontlooksick.com/na...poonTheory.pdf

[Sangye]

Good luck with your test results. You can call them every other day and see if they're ready. Don't assume that longer is better. Longer can mean someone forgot to tell someone else the results are in....

I love the Spoon Theory. I've used it with a lot of my friends to explain how it can be with Wegs. Easier to just tell them I'm on my last spoon than describe it in more detail. I like the website too, but do think she's gone a little overboard about making everything in her life about her illness.

[Doug]

A good one! It is so much like that! Thanks for posting that, firecracker.

[firecracker]

I am actually glad to hear you think she went a little overboard because that can only mean that you dont feel as bad as she does. Me, on the other hand, my whole day is just like hers. I have to start with this minute and plan my whole day so that I can hopefully get through it and maybe get half of the things I need to today. Im off work today since I worked yesterday and have 10 things on a list that I need or want to do. I am already delayed an hour because of my stupid nose and my body just doesnt want to go into drive today. Unfortunately, it has to so here I go to grab my spoons lol. I know if I want to do anything in the afternoon, like shop with my mom like I have planned that I have to majorly take it easy until then which is hard for someone like me. One of my old boyfriends used to call me "want want go go" cuz I would come home, leave, come home, leave. i just was non stop plus working for my dad in his body shop all day on top of it all. I never got tired except at night. I was a lot younger though lol. off i go now. ill update when i hear something on the scans. I have my rheum tomorrow.