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07-08-2019, 03:58 AM
#221
Re: 20 year old son
Originally Posted by
Alysia
So sorry about his headaches and night sweats. I am glad they are going to check his head.
Night sweats can be an indication to wg activity. But can also be related to some virus or infection. How are his labs ?
Thank you. I believe labs are ok. I did not hear differently.
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07-08-2019, 04:59 AM
#222
Re: 20 year old son
I had both headaches and night sweats at the beginning of when WG escalated and I was getting diagnosed. Both of those disappeared quickly with aggressive treatment with Cytoxan and prednisone. Lung, sinus, and ear issues took longer to resolve. With a couple of moderate flares, the night sweats came back, but not the headaches. Everyone is different, but I agree with Alysia that this could be a flare.
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Anne, dx'ed April 2011
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07-08-2019, 05:02 AM
#223
Re: 20 year old son
Sometimes labs take some time to catch up with symptoms, but in my case, with flares, the increased inflammation showed up in labs pretty quickly. Everyone is different.
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Anne, dx'ed April 2011
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07-08-2019, 05:44 AM
#224
Re: 20 year old son
I'm hoping that your son gets some answers for his headaches and night sweats, soon.
Jana
Do not fear anything, just do it afraid!
It does not matter how slowly you go, as long as you do not stop!
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07-08-2019, 05:46 AM
#225
Re: 20 year old son
I'm wishing your son all the best for relief and discovering what is the cause.
Jana
Do not fear anything, just do it afraid!
It does not matter how slowly you go, as long as you do not stop!
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07-10-2019, 02:07 AM
#226
Re: 20 year old son
Good morning, thank you all. His headaches are a bit better, but night sweats still there. He received results from labs yesterday. White blood cells high at 11, but that is his usual. Glucose high at 103. Sedimentation rate high at 34 and crp high at 4.8. We're finding out if these results indicate a flare, and to what extent.
Thank you again
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07-13-2019, 04:02 AM
#227
Re: 20 year old son
Originally Posted by
Aneinu
Good morning, thank you all. His headaches are a bit better, but night sweats still there. He received results from labs yesterday. White blood cells high at 11, but that is his usual. Glucose high at 103. Sedimentation rate high at 34 and crp high at 4.8. We're finding out if these results indicate a flare, and to what extent.
Thank you again
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Any updates yet ?
Did they check his C-anca and Pr3 ? Is he anca positive ? For me one of the first signs of a flare is when pr3 becomes above the norm.
Sending prayers.
שבת שלום
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07-17-2019, 10:17 PM
#228
Re: 20 year old son
I too am recently diagnosed, this has been a very trying 2 1/2 months, still learning about this disease, treatments, remission, flare ups etc. I know that this is very frustrating for me but will continue a positive attitude and pray for the best. Sherry
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07-18-2019, 02:02 AM
#229
Re: 20 year old son
Hi, Sherry. We all remember the stress of the first stages of having WG/GPA. Many are still feeling the symptoms and side effects of the meds, years later. But most will see a significant change for a better quality of life within the first year. So take it one day at a time and you will reach that point. I would suggest that you start a new introductory post under the right category as seen on the forum's Lobby page, where things are laid out in an organized way. If you put something in the title about being a new member with a new diagnosis, you will likely get more attention and responses than by posting in an old and unrelated topic. Glad to have you as a member, and hope to hear more about how things are going, what meds you are taking, etc.
Anne
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Anne, dx'ed April 2011
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10-18-2019, 04:56 AM
#230
Re: 20 year old son
Well, sadly, once again a full-blown flare up. He has bleeding in his lungs and kidneys acting up again. Ankles swelling as well. He will get high level preds thru infusion. They were on schedule to travel to us this evening, but God obviously has other plans.
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