Update on pberggren

[Mike_Milliorn]

Oh, Phil! I just heard. Praying for you. I spent a week in isolation at Cleveland Clinic once before they decided my cough wasn't TB. Had a great room and food but was glad to get out. I hope to hear from you soon. Get well!


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[pberggren1]

Mike, I think you are referring to the beginning of this thread when I was in the hospital back in 2010. I am okay now but a lot worse in other ways.

[Alysia]

Oh, Phil! I just heard. Praying for you. I spent a week in isolation at Cleveland Clinic once before they decided my cough wasn't TB. Had a great room and food but was glad to get out. I hope to hear from you soon. Get well!

Welcome to the Forum, Mike. you are invited to tell us more about you. you can start a new thread.
Phil, I hope and pray that things will become better for you

[pberggren1]

Mike joined the Forum quite a while back. At least 3 years ago.

[mishb]

He must have forgotten his login and started a new one.

Hi Mike and welcome back - I like your new picture

[Mike_Milliorn]

Thanks. Had a really bad year last year. Just sat in a chair for a year with a sheet over my head like a dead man. Feeling better this year. My doc let me quit taking Cellcept and I felt better right away. Just depending on Rituximab now to keep the Wegener's dog away. Never got below 12mg pred before. At 9mg now. hope to get into remission this year.


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[LisaT]

Hi, Mike, I'm glad to hear things are looking up. That kind of a year must really take its toll. I'm new to the forum since you were last here, so nice to meet you. I look forward to getting to know you.

also, Phil, wondering how Batman is doing? Are you okay? I hope you had a good massage and chiro yesterday and that it gave you some relief....

[jmmilliorn]

I look forward to getting to know you.

Hey, Lisa! Thanks for reaching out. In December I was picking songs for my funeral, LOL. Really. Now I feel the best I've felt in a long time. My doc at CC, Villa-Forte, let me quit taking Cellcept. I pretty quickly got over a 3-year sinus situation once my immune system wasn't so suppressed. She and I are hoping the Rituximab will be enough to keep the WG dog asleep while I taper. Down to 9mg. Lowest I've been in my four years. Bright outlook today. Taking the kids/grandkids to the Gulf Coast for a week. Couldn't have done that last year. Best wishes to you, Lisa. I like your avatar.

[LisaT]

Mike, I'm sure this story will provide hope and inspiration for those in the midst of suffering that seems like it won't end... So glad to hear it. Have a GREAT trip!

[pberggren1]

I'm okay. Had a good chrio and massage yesterday. Crashed last night. Had a headache and took a couple T1s and just crashed. I think I over did it a bit last night with some pool. I will try to get up in the mornings from now on and eat a bit more. I am down to 140lb now so I need to force myself to eat more. I am not eating a lot right now and need to eat more.