I am in South Jersey
I am in South Jersey
I think JanW is from Jersey.
Phil Berggren, dx 2003
How do I reach Jan? and thanks
This group has saved my sanity. Wegs is weird and rare and unpredictable...but it attacks the kindest souls
Susan--Here is Jan's page: http://www.wegeners-granulomatosis.c...bers/janw.html. You have to be logged in to access it. From there, you can send her a private message or an email. If you lose this link, you can look it up under Member List (which you can get from FAQ).
Al
I have meet so many weggies in the last month
Last edited by Red; 04-28-2012 at 05:36 AM.
Thank you
This group has saved my sanity. Wegs is weird and rare and unpredictable...but it attacks the kindest souls [/QUOTE]
Perfect quote for a perfect group of people.
It sure is, and I mean it. my own 'family' few that they are.. can't 'deal' with MY reaction to meds..blah blah...this disease puts so much in perspective, doesn't it?
Since this is titled Eastern USA I thought I would let you know that BU and Boston Medical Center is holding an open house in Boston on May 71th. It is being headed by Dr. Paul Monach and Dr. Peter Grayson. These MD's took over for Dr Merkel when he left for Penn. I have met with both before and look forward to this meeting as I have never met (in person) another weg. Also, one of the topics relates to how we look at ourselves and perhaps the fears we face wether warranted or not. I am going to mention this site to them so perhaps they can even lurk if they want to delve deeper into some of the pain real everyday people go through. Dr. Monach is the Rheumatologist and along with Dr. Grayson they work together as a team as Grayson is more into research.
So if you are in the Boston area call the BMC Rheumatology Dept and see if you can get an invite. I assume you need one as there is an RSVP on the invite.
Dale
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