Immune Globulin

[ranpar01]

Just wondering if anyone else is getting Immune Globulin treatments? My Dad just had his second treatment (he'll be doing that via IV every 3 weeks for a while) and he seems to be responding very well to it. I did a search on the forum here and was surprised to see zero results come up. I'd be interested to hear if anyone else has any information on Immune Globulin for WG.

thanks,

Randy

[pberggren1]

I have heard of it before but I didn't know that it was used to treat Wegs.

[Sangye]

I've never heard of it being used for Wegs, either.

[elephant]

I have heard it before but not used for wegeners disease.

[Jack]

Yes, I've heard of it being tried for patients that do not respond to Cyclophosphamide. I don't think it is in general use.

[LisaMarie]

IVIG is a new drug being used for WG...it is rarely used and from my understanding only works for some...The infusions are not that bad per the patients i give it to in their homes...last 3-8 hours depending on dose...premed with tylenol and benadryl and can use a very small guaged needle to infuse it..22-24 guauge.....Make sure you keep hydrated ...drinkl plenty of fuild before during and after...if not you have to get normal saline boluses....None of the patients I give it to have WG...most have a chronic infammatory nerve disorder.....They all say they feel better have increase mobility and decreased pain after the infusions...hope it works for your Dad...Please keep us posted