Hello everyone...I have just been given the diagnosis of WG.....I started a year ago with upper resp issues and it was chalked up to my hx of asthma...after several misdiagnosis a bronchoscopy was done in December 2009 and I had sub glot trach stenosis.....found and expert at KU Med to repair it..I was 80-90% occluded by the time he go in there in Feb 2010....we did laser with erythromycin and balloon dialtion...at that time no eitology was known...a month out I was healing slowly and 25% occluded...then all went crazy...I got a repir cold I cold not shake and by the time I got in to see the specialist I was already 50% occluded...and WG was noted ...It also effects my right pariod gland cause the right side of my face to swell...I am seeing an RA specialist and he started me on pred 20 mg daily and methotrexate 10 mg q week til we can get the rituxan approved....i am a whimp when it comes to meds...I am throwing up the 1st 24-48 after taking the methotrexate...so not sure what they rituxan will do...They started me on low doses to see how I handle it...They wanted to start me on 60 mg of pred daily...I am wanting to know if anyone has the same sites I have...my doctor tells me that where mh WG has chosen to settle can be hard to treat and is rare....I have 4 children under the age of 15 and hate feeling like crap all the time and too exhaust to do activities with them....Does it get better?...I use all my energy to go to work...I guess I am just fustrated...sorry and info on this disease would be greatly appreciated
Thanks
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