Welcome Amy, glad you found us, you'll find much help, caring, and advice on here. You definitely need a 2nd opinion. And, you need to make sure your docs know WG/AI diseases. If they don't, they are reading out of a book and you are their guinea pig. They can consult Vasculitis centers all over the world if they want...you need to ask them if they are. NO guessing here, it's a guessing game anyway cuz docs don't know this disease. Also, you need to put this note on the Forum under newbies! Thanks, and best to you!
Knowing how to think empowers you far beyond those who only know what to think. -NdT
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