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Re: The scariest 14 months of my life and then Wegeners
Thanks for your response Vera. This will be my 7th Rituxan treatment so I do expect to be feeling better soon. I hope you’re off your Prednisone soon. Since you’ll read my book perhaps I will get on with it sooner.
Being on this forum confirms what I’ve learned as a Vasculitis patient & as the mother of a Vasculitis patient for 20 long years of this - dealing with this disease requires infinite patience and requires the ability to act quickly at times as well. I realize I was too patient with my Nashville drs & waited too long to seek proper care. It’s very difficult to put up with ignorance from our doctors and all too easy to become defensive.
At one time I was a premed student and worked in the field. This has given me a few skills to research with but hasn’t made it much easier to be a patient.
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