Building Resistance to Rituxan

[Eduardo]

In agreement what Alysia said, my WG dr. in 2014, my first flare, decided to use RTX only after the symptons begins. I received 3 RTX infusion until now, two years of interval from one to another. He uses this medical procedure trying to avoid hipogamaglobulinemy, IgG falls. In al three times the WG didn't make damage, only initial and inespecific symptons, never lungs or kidneys. To me it is working, thank godness. When you find the research, please, send it for us, Alysia.

[Alysia]

In agreement what Alysia said, my WG dr. in 2014, my first flare, decided to use RTX only after the symptons begins. I received 3 RTX infusion until now, two years of interval from one to another. He uses this medical procedure trying to avoid hipogamaglobulinemy, IgG falls. In al three times the WG didn't make damage, only initial and inespecific symptons, never lungs or kidneys. To me it is working, thank godness. When you find the research, please, send it for us, Alysia.

I posted it also above.
Here it is

https://ancavasculitisnews.com/2018/...-comments/?amp

[Eduardo]

Thanks! Did you see, Loic Guillevin's research? My Doc. follows French line. Thank once more.

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Thanks! Did you see, Loic Guillevin's research? My Doc. follows French line. Thank once more.

If I’m reading the 2014 study for the French Vasculitis Study Group Dr. Guillevin appears to recommend RTX. Will look into his other research. Thanks.

[freakyschizogirl]

I may be late to this party but I am in this boat right now.
I've had RTX for at least 7 if not 8 years in various protocols under Addenbrookes. Last June I have the new generic brand of RTX called Truxima. I reacted to it and felt no better following the infusion. I went back in October and had another armful of RTX but the old MabThera RTX. I then reacted to this. Again I didn't find it made me feel much better so had one last go this past January and reacted to it again.
I'm still having symptoms but no active signs of disease in my sinuses or my bloods but I feel like I'm about to flare.
Prof Jayne is hoping to get me on the Orencia trial once the RTX is out of my system so I am holding on for that. The plan is to get me off RTX for a few years and hopefully I will then be able to go back to it.

[drz]

I may be late to this party but I am in this boat right now.
I've had RTX for at least 7 if not 8 years in various protocols under Addenbrookes. Last June I have the new generic brand of RTX called Truxima. I reacted to it and felt no better following the infusion. I went back in October and had another armful of RTX but the old MabThera RTX. I then reacted to this. Again I didn't find it made me feel much better so had one last go this past January and reacted to it again.
I'm still having symptoms but no active signs of disease in my sinuses or my bloods but I feel like I'm about to flare.
Prof Jayne is hoping to get me on the Orencia trial once the RTX is out of my system so I am holding on for that. The plan is to get me off RTX for a few years and hopefully I will then be able to go back to it.

I love the quote from Jack. I will always treasure his advice and support he gave me when I first started on this forum.

[freakyschizogirl]

Hi drz. Ita amazing how even now Jack is often thought of and spoken of. He will always be remembered fondly by me as he was the main reason I went to Addenbrookes and its been the best thing I've done for myself and the disease.