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Re: New to Wegener world
Originally Posted by
seied
Hi Masha,
I don't think Methotrexate is a daily pill. It's a once-a-week, cytotoxic chemo medication.
Ed.
Hi Ed.
I was on mtx once a day. My dr. Told me to take the pills everyday instead of all in the same day. Mtx didnt work for me after all. I wonder if it didnt work because of the way I took it although my dr assured me that it is not related.
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Re: New to Wegener world
Originally Posted by
Alysia
Hi Ed.
I was on mtx once a day. My dr. Told me to take the pills everyday instead of all in the same day. Mtx didnt work for me after all. I wonder if it didnt work because of the way I took it although my dr assured me that it is not related.
Hi Alysa,
Someone please correct me if I'm wrong, but I don't think there's a protocol for daily Mtx.
https://www.pharmacytimes.com/public...2/2005-02-9297
Another:
http://theconversation.com/weekly-do...en-daily-60322
Ed.
Last edited by seied; 08-18-2018 at 12:01 PM.
Reason: Add info
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Re: New to Wegener world
Originally Posted by
seied
I guess you are right. (Although my dr. said that daily dose was also ok.)
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Re: New to Wegener world
Originally Posted by
Alysia
I guess you are right. (Although my dr. said that daily dose was also ok.)
Maybe you'd want to give Mtx in pills another try.
A combination of weekly Mtx and a daily low dose prednisone might put an end to a smoldering GPA.
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Re: New to Wegener world
Originally Posted by
seied
Maybe you'd want to give Mtx in pills another try.
A combination of weekly Mtx and a daily low dose prednisone might put an end to a smoldering GPA.
Thank you for being thoughtful. I got the rtx as both maintenance and treatment. I hated the mtx, it caused me hair falling and many UTI's. It worked but not on the wg.
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Re: New to Wegener world
Originally Posted by
Alysia
Thank you for being thoughtful. I got the rtx as both maintenance and treatment. I hated the mtx, it caused me hair falling and many UTI's. It worked but not on the wg.
Well, keep in mind that when you tried it before it was dispensed wrong, so the negative side effects might not be due to the Mtx itself but the wrong daily dose.
Also, I'm taking folic acid every day to prevent my hair from falling off and reduce side effects of Mtx. With the exception of fatigue, it works for me perfectly. I have not lost my hair. I also didn't catch any infections -including cold/flu in an entire year.
I did suffer a flare up right after my (former) rheumatologist made me taper off prednisone completely and would not change the course of treatment to stop the flare up. I was down to a safe 3mg/day back then and now I'm having a very hard time even at as high as 20mg/day. He's no longer my doctor because of that. I'm down to 10mg/day and still have some roving arthritis. I'm hoping I can get back to 3mg/day again.
I would also say that your daily Rx of Mtx is a medical mistake. I'd be careful with that doctor.
Ed.
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