HI Everyone, I'm SherryJ 11 years in to my GPA w/ 20% kidney function. Thanks to all of you, yesterday was the first time since 2007 where I realized I'm having a GPA flare up. Reading your posts have educated me greatly. Sadly, I have allowed my Nephrologist to manage my disease and just today contacted a rhumatologist to take the reigns. I'm saying prayers he will take me as a new patient!
I was in renal failure Nov. 2007; Creatinine 9, Hgb 7, dxd with GPA. I received 12 weeks of dialysis and my kidneys rebounded enough to be taken off.
Meds - was on Prednisone, Cyclophosphimide changing over to Azathyaprene. Since then my meds are limited to BP meds, Cholesterol and Thyroid, and lots of antibiotics over the years.
To date, just one kidney functions at 20% and no dialysis since Jan. 08.

Look forward to meeting everyone and thanks for letting me join you.

SherryJ