Thursday was my seventh infusion. The third in the second series of four. As I stated previously the infusion room has twenty chairs and is a revolving door of RA patients, but I never met another Weggie. Like many of us she had recurring sinus infections, and was diagnosed three years ago. It hit her hard, then she got Bells Palsey on top of it. Had to have ear surgery too. Like me, she was told she has had this disease for years. So I wonder how many of us are out there that go undiagnosed for years. Is it as rare as we read?
After this last treatment, I am feeling stronger. One more infusion this coming week, then if I stabilize I will go to two every six months. My steroids are being slowly decreased, until I get to 5.
Have been told by both Rheumatologist and ENT to pace myself. But you all know after the infections, malaise, aches and pains depart we want to make up for lost time.
Would also like to avoid losing more teeth. I have had enough implants that I feel like I am a mouthful of chicklets.
The doctors also stress avoiding infections. But how? I Sinu rinse, stay away from toxic smells, any other tricks?
Take care y’all.
Masha