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I had my second infusion of rituxan last week. No hair loss. After the first one it took a couple of weeks to start to feel better. I am on prednisone 30, cellcept 1500mg and cyclosporine. I started on prednisone 40 mg the beginning of June. Hoping you have a quick recovery!
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How long does the extra fatigue last? I'm still so wiped out I can't do much of anything but sleep. I'm trying to just rest because my body demands it but my mind wants to get moving so I'm just wondering when others started to get a bit of energy back after the infusion. 😊
Just when the caterpillar thought the world was over, she became a butterfly.
- English proverb.
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Glad you're starting to feel better! What have they told you about when andbhow quickly you should start weaning off the prednisone? I'm only on 10 mg but would like to cut it down as soon as I feel well enough.
Just when the caterpillar thought the world was over, she became a butterfly.
- English proverb.
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How long do you stay so tired for? It's three days after and I'm still really wiped. Can't do much. But I'll just rest until I feel up to doing some more.
Just when the caterpillar thought the world was over, she became a butterfly.
- English proverb.
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I think a lot of the fatigue comes from crashing off the big dose of steroids and Benadryl. I'm usually a little tired for 24-48 hours after infusion. I find that a bit of light exercise helps.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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I think the high dose of prednisone is keeping me energized, so I'm not that fatigue. Plus all the other immunosuppressive drugs I'm taking is knocking the wegners down. I say I am feeling about 75%. Hope you feel better soon.
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That makes sense because I've also had weird soreness and pins different from my usual. They had to give me second doses of both pred and benadryl when my ears and throats started itching and feeling full. If only prednisone wasn't as bad for us as it is good! We could just stay on mega doses and feel good.
Just when the caterpillar thought the world was over, she became a butterfly.
- English proverb.
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I think there is hesitancy from my rheumatologist reducing my prednisone too fast. I had sinus, eye and lung involved in my last flare. Then ended up with sinus surgery in July. Total sinus surgeries:5! I was out of work for two months from coughing and sinus pressure and headaches. Still have upper right back tooth ache. Tuesday will be two weeks post rituxan infusion. Hoping it will kick in ASAP .
Hoping soon I can slowly get off prednisone.
I have not exercised in 3 1/2 months. Thinking about walking a mile today.
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Originally Posted by
elephant
I think there is hesitancy from my rheumatologist reducing my prednisone too fast. I had sinus, eye and lung involved in my last flare. Then ended up with sinus surgery in July. Total sinus surgeries:5! I was out of work for two months from coughing and sinus pressure and headaches. Still have upper right back tooth ache. Tuesday will be two weeks post rituxan infusion. Hoping it will kick in ASAP .
Hoping soon I can slowly get off prednisone.
I have not exercised in 3 1/2 months. Thinking about walking a mile today.
It may take several weeks for rituximab to take full effect. That said, you should gradually feel better.
Go for a walk today, but don't overdo it. If you feel up to it, try again tomorrow. Just listen to what your body tells you.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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Dear Lisa, each one is different. For me it takes about a week to be less tired, and about a month not to feel the weired feeling in the body, something I cant describe exactly, kind of a feeling similar to being after car accident. About a month after rtx my bloods start to look better (if I flare) and 2 months later I am as good as new.
Dr. Phil was not too tired after rtx, not even at the same day that he got it. But he is The Batman.
elephant, is this your first rtx IV ? I remember reading many of your posts on old threads.
How are you both feeling today, ladies ?
Sending prayers ❤❤
Last edited by Alysia; 09-10-2017 at 11:46 PM.
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