Dr. Appt Today

[Aunnie]

To: Sangye,Col23 and Phil,

Thanks for your encouragment and kind words ,Pred makes me crazy,I can't stand it.I've been on it for 3 years,on 7 mg now. I can't seem to get lower than that without new lesions or other symptoms.

Phil,I'm glad you are going home soon and you don't have to stay 2-3 weeks.....

We have to be cheerleaders for each other....rah,rah

Take care all,Aunnie

[Lightwarrior]

I talked to Dr. Tagboto this morning and he said I should be out tomorrow or Wednesday.

Avelox is a broad spectrum anti-biotic.

I'm happy you are going to be going home, take care and don't overdo it Phil.

[Sangye]

Glad to hear you're getting sprung from the hospital, Phil. (I was thinking "Two or three weeks? What? They didn't even keep me that long when my lungs were hemorrhaging.") You're more likely to get infections the longer you stay in a hospital, and they're more likely to be difficult-to-treat infections.

Aunnie, I understand. I can't even tolerate 5mg pred. I hope you can get to a Wegs specialist. They might be able to get your pred lower-- at least to 5mg or below.

[LisaMarie]

Phil glad to hear u r getting sprung..they r right about being in the hospital:....unless u get negative air reverse isolation u can catch a nasty bug....i have to wear a mask at work when I am in patient care areas....luckly my main work area is away from all that..keep ur chin up Phil...hopefully Mayo will help coordinate ur care

[elephant]

So Phil they are just covering you just incase you have a sinus infection?

[Col 23]

Lovable or cheeky Phil they still needed the bed.
Great to hear your out of the hospital. I always worry I would get more infections in the hosptial.
Remember to rest Phil and take care of yourself when you are home.
cheers Col 23

[Col 23]

Ha Har..lol Lightwarrior I should have thought to put a bit of humour with it... Suppose at the time it didnt feel very funny..
cheers Col 23

[Col 23]

I would have thought I had lost my mind if I hadnt read your discussion on here a while back Sangye. I noted that you didnt even put in thumb for the hammer.lol.. It is a bit scary but Im so use to all sorts of weird WG/ Med stuff happening now. This morning after do some minor household chores I went into full dizzyness and thought I was going to pass out. Checked blood pressure and sugar levels all good. So took it easy and hasnt returned for the rest of the day. If all is well after visit to Rheumy tomorrow I will be going down to 12.5mg Pred a day. I just want to get to the 10mg, is that the magic one where you begin to deflate like a balloon???
cheers Col 23

[Col 23]

Its very frustrating Aunnie and all so unknown. You never know if your going to have a good day or bad day. Rah Rah Aunnie... turn the music up....go for the fun even if its 5 mins... I have been telling all my friends I have "life is too short syndrome" and that I am now a" spontaneous woman ". Works for me right now.
cheers Col 23

[Sangye]

I would have thought I had lost my mind if I hadnt read your discussion on here a while back Sangye.

That's why we're here. To convince each other that we're not losing our marbles.