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  1. #1
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    Holy AI Diseases VDub Man!!!

    I really hope that they can get you on the right path and drop your pain to manageable levels. It sucks to be in pain all the time.

    Nice to know about the pain pill damage. Sorry you have it. I am glad that they are my last resort these days, and not the norm as they were in 2012.

    Get Well Soon our Little Kahuna Apprentice!!

    Drive on!!
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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    You certainly gave me a chuckle for the day, Mike!

    Sun finally came out, so maybe I'll go work on my MG a bit.

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    @vdub: Yikes!!! Glad you're managing ok. Looks like you may join @BookNut as an honorary weggie.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    VW
    Sounds like a through eval which you hoped Mayo would do, but results are a bit mixed for sure. I hope things get better down the path for you. Keep us posted on how it goes for you!
    Knowledge is power! Wisdom is using it to make good decisions!

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    Yeah, no wegs, Pete, I'm out'a here buddy! :-)

    If I don't have any weg's symptoms in say 6 months after coming off the mtx and pred, then I'd have to conclude that I don't have wegs. Which in a way would be too bad, because if you look up the causes for fibromyalgia (assuming I have it), then it could have very well been caused by an "over reaction" to my pituitary (or lack of) which is a certainty and treating me for wegs -- if that somehow makes sense.

    Personally, I don't think I have fibromyalgia. One of the things that was mentioned several times to me was "deconditioned" and I thought to myself "fat, lazy, out of shape slob". When I finally got home and looked up the medical definition of deconditioned, it is more than being fat and lazy since there is both a mental and physical component to it. Its still fat and lazy, but more involved than just being a slob. I'm hoping the summer sunshine and good hard work will reverse things. that's the hope anyway. Besides, I would fit into my MG a whole let better if I lost 20 lbs.

    Speaking of the MG.... I'm putting a new top. Up to this point on the restoration trail, I haven't had a top. When Geoff and I were running all around Idaho we hoped for good weather and sunshine because there wasn't any top. Now I have a top (almost anyway, I still have some trim to do) and for the first time in 42 years I sat in the car with the top up. I have to tilt my head slightly to see out the front windshield. Kind of funny. I'll see if I can get a picture of it.

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    Quote Originally Posted by vdub View Post
    for the first time in 42 years I sat in the car with the top up. I have to tilt my head slightly to see out the front windshield. Kind of funny. I'll see if I can get a picture of it.
    Just do like Bubba Smith did in Police Academy. Sit in the back seat. Wait....that won't work will it? (-8
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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    Just do like Bubba Smith did in Police Academy. Sit in the back seat. Wait....that won't work will it? (-8
    HA! No, I'd be sitting on the gas tank. I'll try to mostly finish the trim today and get a pic.

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    Here we go! A bit tight, but that gives me more reason to run with the top down.

    IMG_20170418_100014.jpg
    Attached Images Attached Images

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    Sounds complicated... thanks for sharing, vdub. I am sorry for your pains.. I thought that your granulomatosis Hypophisits is part of WG... no idea if all these are good news after all ? Hang in there with the withdrawls... praying for you.
    Btw, Doug who was a member here, was more then 10 years without any wg symptoms. So not sure if 6 months can tell... lets hope you just dont have it.
    Last edited by Alysia; 04-20-2017 at 05:18 AM.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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