Posting on behalf of Sperez7

My son is 24 years old has be diagnosed with Wegener's he has been in Sutter Hospital since November 17th 2016 still here currently. He is out of ICU but is still in pretty bad shape, he has an an air leak in right lung with a Chest tube place since November 29. He also has Aspergillosis infection in his lungs, hasn't been able to pass swallowing evaluation. So he has a G tube placed as of last week. Doctors involved are not on the same page as far as treatment going forward. Rheumatologist stopped him from further treatment of Rituximab after two seasons. Infectious disease doctor was treating him with voriconazole while he was out on leave for holidays, Rheumatologist doctor started him on two new fungal medications because she said his body wasn't responding to voriconazole. I am scared & a nervous wreck because if the doctors aren't treating him together what the outcome will be for his life!! Please help me with anyone in California who can help!!!